flaring from stress

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 4/30/2009 12:50 PM (GMT -7)   
I am flaring from stress. As anyone who read my last post knows I have major stress going on in my life. I really need to find a way to relax. Anyone have any ideas how I can go about relaxing because I really don't know myself. I can't take a bath and soak our tub is too small. I can't find anything I want to read. I have no relaxing hobbies. Basically I have forgotten how to relax. My neck and shoulders are so tense the muscle feels like bone. My joints are stiff and swollen. I am tired constantly despite provigil. I feel like crud.
 
On a positive note the hearing for getting Alexander back has been set for June 29th. He has the test for osteogenesis imperfecta next week on Thursday, his birthday is next Friday. I cannot believe how fast this year has gone by or how slow the time since he was taken has gone. I want my son back, I didn't hurt him and my husband didn't hurt him. Why can't they see that? He doesn't act like an abused child. He is open and trusting and happy and always glad to see us. I hate this but I understand why they have to be careful. It just seems like they could spend 5 minutes with him and know he isn't abused. Well, I will get off my soap box and end this before I get angry again.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/2/2009 1:35 AM (GMT -7)   
Hey, how was the test for your son? For relaxing hmm crocheting, knitting, a new book or million books, uh hiking, camping, swimming, horsebackriding, suntanning at the beach, freelance poetry (I tend to write my emotions out), uhh traveling, talking on the phone, talking to us, uh hmm im thinking im thinking make a few web pages, naps, painting, making crafts hmm drawing/sketching, building something, redecorating hmm lol im out of ideas
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/2/2009 3:49 PM (GMT -7)   
the test is the 7th and they have to take a piece of bone to biopsy. it will not be fun for him and they won't let me be there.

Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 5/2/2009 5:44 PM (GMT -7)   
Redrose...

Maybe when you take your shower.. you could turn the light off and light a candle, turn your radio on and just let the hot water help you heal...
That is what I do.. The candle light is relaxing... I have done this every since I heard this lady on Oprah talk about doing it... for herself.... It helps....

I'm sorry about the baby.. I do remember reading that... I hope you get it all worked out..... good luck....and all the best....

honey007
New Member


Date Joined Apr 2009
Total Posts : 14
   Posted 5/2/2009 5:59 PM (GMT -7)   
Hi Redrose Sorry to hear about all thats going on in your life. I find yoga and mediationa great form of relaxing. My compulsory dose is once a week and it works

Honey

LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/5/2009 12:28 PM (GMT -7)   
Hi Redrose, I can tell you some things I do to try to deal with extreme stressors in my life as of late. First of all i do see a counselor so I can tell the stuff that causes me pain. I also spend lots of quiet time just writing how i feel. Sometimes they are prayers and sometimes they are just venting to get it out. I also do deep breathing exercises I learned from my counselor. Sometimes I sit on my porch swing and listen to soft soothing music. Sometimes I just sit and cry it out. These past few months, my dad has  had a massive stroke and i stayed by his bedside to remind him to clear his throat so he wouldn't choke until nurses had time to deal with him. I had to change diapers on my dad. shakehead My son who has severe mental health issues, is not doing well and he calls to scream on the phone. I have been too sick to take care of my home anymore and I am selling it, to go to live with my daughter and son-in-law. The packing and giving away my beloved animals has worn me out and caused me great pain. I can't imagine losing a child. My heart hurts for you. I prayed that the truth would be known and you would be vindicated. I hope this helps. In His care, Tammy

I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/5/2009 12:46 PM (GMT -7)   
Thanks everyone. I am going to try a few of your suggestions. I already see a psychiatrist so therapy is taken care of. I can't cry it out because crying gives me a migraine but I would love to try that one cause that is what I feel like doing. Oh well, I guess I have to adapt everything to what I am capable of doing. I am so sick of modifying everything to things I am capable of.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/5/2009 4:34 PM (GMT -7)   
And you can talk to us at any time hun :)
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 5/10/2009 1:52 AM (GMT -7)   
RR,
Hopefully I am not too late and you will get a chance to read this. I am the queen of relaxing (because for a loooong time I didn't). Here is a great way to start- find a tv show or movie or cartoon whatever, that you used to watch as a kid or in a happy part of your life. The older the better. Something that you haven't seen forever. I like to go to youtube and watch old clips that I couldn't even remember that I'd forgotten. Usually these are things that are simple and don't require anything but for me to enjoy them. Since they are clips I can make this time as long or as short as I want depending on how much time I have. I just bought an iPhone so I can even sneak something in on break from work if that's the cause (which it usually is). Because it is 100% mindless and enjoyable I can not think for awhile and just smile. I also download a bunch of silly songs that I just like to listen to (I'm 35 but I love 50's, 60's and 70's) like Harper Valley PTA- so funny and strong. Or the theme song from George of the Jungle. It doesn't take a lot of brain power to laugh but it feels good to NOT think. Now might not be fun or happy, but sometime in the past was and in the future will be again.
Thanks!
Trish.
 
"It is what it is"- Grace Lindsey- my Grandmother.
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/10/2009 8:21 AM (GMT -7)   
Redrose,

Journaling and meditation are great stress relievers. If you've never tried meditating, it takes a while to get it right, but it's worth the effort. You'll be surprised how the stress will flow out of you.

I hope you find your way.

Love,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/12/2009 10:48 AM (GMT -7)   
I journal as a means of staying sane. I will try meditation though. I found a mindless cartoon to watch when I am awake at the right time. I may need to search u-tube. I just finished dealing with changing my address with everyone and their brother, plus big brother aka SSA. I finally had a bath after years without a tub I could bathe in. Our new place has a tub big enough for 2 skinny people or 1 fat person with extra room. ;) I am very pleased about it. We still have a lot of moving to do. We celebrate Alexander's birthday with him tonight. I got him cupcakes and several presents but he only gets 1 present tonight. The rest have to wait until he is home.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/12/2009 1:20 PM (GMT -7)   
hi RR ... Happy birthday to Alexander! i also just love cupcakes! did u mention how old he is? keep thinking ... wait until he is home!! he will be home!
sending lots of gentle healing hugs to you all! LOTS!!!! hope his test passes quickly & as 'routinely' as possible ... they may keep you physically from being with him but they cannot keep you from sending all your love and healing energy to him ...

how to relax ... good one ... altho contrary to a previous reply - i do not reccomend suntanning at the beach ... scary bad uv's! do reccomend sunscreen!

idea got one ... my best is nature - taking photos of birds, butterflies, flowers, even people, anything really ... photgraphy (even digital) has a way of slowing things down and zoning out the background stuff, i can really focus or just fluff! i take a just a few pics and retire or sometimes spend hours ... no rules. there is such variety of cameras that finding a comfy one isn't a mamoth task (hands dont work the same everyday) when i download again takes me somewhere so magnificent that it is hard to believe the world i live in has so much beauty still in it ... also nuts about getting the dogs doing stupid things ... know the expression 'a pictures worth a thousand words' they always make me laugh. my mum-in-law tends to rename all her pictures with a date name etc ... so i copy her files over and have a full chronological picture diary ... me i dump things into the month folder and sometimes fiddle ... no rules wink

baths, candles, soft music go well! (espcly help my deep aches, headaches/migraines, cramps) sometimes pampering is good for the soul ... everything slow! i meditate on a protective healing white energy that fills my whole body - i like to think it keeps me safe & always comes from inside (easier for me than seeing/imagining 'an aura') but again i don't think there are rules? also my mantra is - this too shall pass!
be popping back to see how you are ... strength to you and hope you get some deep R&R (rest & relaxtion in case you forgotten ... LOL)

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/12/2009 7:22 PM (GMT -7)   
Alexander is 1 now. He didn't really like his cupcake- I don't blame him I didn't have time to make them myself so they were store bought. I don't have a camera at the moment and refuse to buy another cause the police took mine and our computers trying to find evidence we abused our son. They won't find any evidence of abuse because we didn't and don't abuse him- after all I risked to have him and all the tragedy in my past like h#ll I am going to let anyone hurt my baby. I would take a baseball bat to anyone who dared to hurt him. I don't care if I went to jail the person who hurt him would be 100 times worse than anything they could do to my baby when I finished with them. But I digress, since I know his getting hurt was an accident and likely caused by a serious medical issue I won't be taking a baseball bat to anyone in the forseeable future. My stress levels are evening out which is good. Our move is going well, though slower than I hoped. I really wanted to be 90% done by now but we are more 50% done. Ah well, we are doing our best and will be moved by Sunday evening. Even better we are fairly organized at the new place. That means that things will be neat and clean when the move is over instead of a cluttered mess.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/13/2009 10:17 AM (GMT -7)   
hi redrose ... Bless him, such a tender little age ... he will be home soon! suppose the cupcakes & gifts are not that important as when you get back together again ... that will be the gift
it is good to hear that the move is happening and things will be looking up ... change is often for the better.
you really do have a lot going on and cannot begin to understand it all ... but offer my ears/eyes, love and unconditional emotional support.
makes me angry when i think about what the system is putting you thru ... so i feel you re: baseball bat!

the faeries would suggest 'make music' however musical you might or not be - even signing along to a favourite song!

A

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/13/2009 1:02 PM (GMT -7)   
I hope the faeries move with us, our new place is much more friendly. The gloom of the place we are still at until this weekend adds to my mood. The rain doesn't help any either.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/13/2009 2:22 PM (GMT -7)   
i quite by chance happened opun a set of 'Healing with the Fairies' oracle cards by Doreen Virtue (try google it) i find them positive to have around, i let friends shuffle and pull a few and the messages are truly amazing - always healing and positive - as deep or playful as you need ...
also keen on growing vegetables. fruit & orchids hydroponically (have had some success with traditional growing) ... hmmm my new hobby ? would love to sustain our family on organic home grown fruit & veg ... also plays such a big part in feeling strong.
don't overdo any on the packing lifting etc ... at one time ... lots of littles ??? if you have to
A

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/13/2009 8:33 PM (GMT -7)   
Hi redrose. Sorry to here about Alexander's biopsy and possible illness. I missed a chapter here, but know what you are going through. It's so hard when you are sick and not rich. I'm glad he's coming home and I could spew what I think about some of the idiots in the govt but its not very calming. You are right to get past it. I nearly lost my son because I was a single mom and my son got suddenly sick with a swollen neck and I took him to the ER. They wanted to know why Ididn't take him earlier. I told them I took him right away, that his neck swelled up really fast. They didn't believe me and I pulled out a bottle of penicillin liquid dated that day and told them they could call my local clinic because my son had just seen his pediatrician two hours earlier and had no such symptoms.

They didn't care, called social services, put my son in intensive care, gave him loads of iv antibiotics and he got so bad he had to be intubated and nearly died. Allthe time some rich social worker who went to wellesley college and wore huge diamonds and had never had children, was grilling me to the point I called allmy friends and family, who finally flew in. When they topped the antibiotics, they had to, he was gettng worse, all the sudden he started getting well immediately.

The ENT doc, who promised that he'd remove my sons tonsils when he got well, refused to do so, claimingthat it was a one in a million problem, he had no diagnosis still for it, but it would never happen again.

A month later, at my mom's my son got another ear infection. She took him to the doc, who gave him penicillin. In two hours he was in the emergency room of the country hospital, where they figured out that he was allergic to penicillin.

My son has permanent damage from this malpractice by Mass Eye and Ear, he has epilepsy, a common result of penicillin allergy suffered and also from the intubation and respirator not getting adequate oxygen to him.

I was treated like dog snot. I was accused of not gettng medical care for my son, when, if anything, perhaps he got too much care. I was threatened, intimidated, and if my parents hadn't laid down the law with the worker, they probably would have taken my child away and killed him in the hospital.

I hate the doc to this day who hurt my son, he was so arrogant, and so ignorant. I know I should forgive, but since I had no chance to sue, I have a lot of hatred I'm trying to work through. They always call social services and attack the parents when they commit malpractice because they figure if you are being attacked, you won't go after the hospital and doctor and notice how they are screwing up. And if you do object, the social workers use it as grounds to try to say you are unfit. It's so disgusting.

I fully feel for you, Redrose, and I know how hard it is without having that big old family support that other people have, esp. the grandparents. I'm so glad you are handling this sanely and am so sorry you and Alexander had to go through all you have had to go through.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/14/2009 8:37 AM (GMT -7)   
Redrose,

I hope your move isn't too much for you, but I'm happy that you'll be in a brighter happier home. Good luck this weekend.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/14/2009 11:59 AM (GMT -7)   
Thanks Marji, I love how it is guilty until proven innocent and that due process of law does not apply to these kinds of cases. We got really lucky and got the best lawyers in the state for this kind of case and they say we can win. Since we have already done everything they asked us to we should get him back as soon as the judge realizes that there is no case only conjecture and speculation. I have this worker who is younger than me and doesn't have kids who looks at me and sees fat and poor and assumes bad parent. I have no outside support because my family is too far away. What I do have is in-laws who want constant updates and bit#h at us incessantly.

Pat, thanks I hope it isn't too much too of course hubby isn't letting me do much. The biggest thing I am to do now is go through all my books and pick some to get rid of. I hate to get rid of books but I have thousands so it is only fair since hubby is getting rid of most of his stuff.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

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