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Kookla
Regular Member


Date Joined Mar 2005
Total Posts : 401
   Posted 4/30/2009 8:09 PM (GMT -7)   
Any advice on anyone here that has had any experience.. lemme know. thanks all ... Oh I have hired an atty too...
Diagnosed Lupus 2001, Lupus Nephritis, Anticoagulant
Cellcept, Lisinopril, Coumadin, Cymbalta and seroquil


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 4/30/2009 8:22 PM (GMT -7)   
Does your attorney specialize in disability?

If so, let him/her tell you what to do. The SSDI process is one of denial and they look for any reason to deny an application. It took me 3 tries and an attorney to get approved.

The national stats are that 2/3s get denied on first app. Only 10-15% get approved on the second app but 2/3s get approved on the third try. An attorney can't influence the first 2 applications but he can make sure you don't shoot yourself in the foot answering questions. The third time goes to an administrative law judge and the attorney can really help then.

Good luck,

Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/30/2009 8:26 PM (GMT -7)   
Hi Kookla, Have you been denied already? Usually people try on their own first. I didn't have an attorny. I was one of the lucky ones that got it right off the bat so I really don't know what to tell ya. Just to do what the atty says until he doesn't do his job right. States are so different. I know from being on here how sick so many people are and am so blown away when I find out they are still fighting for SSD.
Good luck I hope you don't have to wait too long to get before a judge.
hugs
carol
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/1/2009 1:04 PM (GMT -7)   
Be patient is all I can say it is a long drawn out process, also be sure you can pay all your bills without working. Hopefully you have family to help. It took between 2 and 3 years for me to get approved. I got denied the first time and got a lawyer he said if my doctors were on my side about being disabled there was no way I would lose once we went to court and he was right, the judge's decision letter tore the state disability determination service a new one for ignoring the more serious conditions I have and instead focusing on the least serious of my problems. So be sure your doctors are on board because having them do residual functioning capacity forms will be a big deal to your case.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/1/2009 6:32 PM (GMT -7)   
kOOKLA
It does take time! I had short and long term disaibly I pick up when I was working that help out alot. I tried the first time and was turned down, I got an attorney the second time and won.It took about 13 months for me. Good Luck
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/2/2009 1:50 AM (GMT -7)   
I was put on SSI/D as a teen. My mom had to try 6 times before she got me in. Good news though, from the first day you try....and the day you get in you get that all back payed! Catch is, you have to spend the money. Sneaky is...get a friend or a parent or someone you super duper trust to open a checking account or savings in their name and stash the money there. not all but some. When they ask say you went out to eat a lot and didnt think of saving the reciept. I prepaid some bills, caught up in debt and hid money aside hehe.
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 5/2/2009 5:51 AM (GMT -7)   
Hi Kookla. I was approved first try w/o an attorney, but I had been a federal employee so that might have helped.  I started getting copies of all my medical records and paperwork while I was still working. I spent over $100 making copies. Then I became very ill and had to quit work. I filled out the disability application online and even though I couldn't walk w/o my walker, I went to the Social Security office with copies of all my records before they even asked. My case worker said it was the most complete application she had ever seen. And like Redrose said, the docs must be on ur side. Best of luck with this Kookla. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/2/2009 8:10 AM (GMT -7)   
You have to spend all the backpay money? Where is this stated? I've never heard of such a thing before!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/2/2009 9:20 AM (GMT -7)   
I think I know what smurf is referring to!! if she was on some other kind of services she might of had to pay back. When I got ssd. I had to pay Med. life back even thought I paid for long term disabitliy, when I won ssd.!!!! med.life makes up the differance that ssd don't give me!! It goes by what you make. I hope you can follow me on this cause it is hard for me to explain. I would not advise any one to do what smurf. is talking about. If that is the case. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 5/2/2009 11:38 AM (GMT -7)   

By federal law attornies can only charge 25% of retroactive SSDI up to a max of $5300.  They are allowed to charge for other services like copying, etc.  My attorney did not charge for anything other than the base fee.

Bill


MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


kookla34
Regular Member


Date Joined Feb 2010
Total Posts : 31
   Posted 2/17/2010 1:02 PM (GMT -7)   
darn near a year now and I have my first hearing! I am Kookla!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/17/2010 4:06 PM (GMT -7)   
That sounds about right for timing, and quite a bit shorter than the 3+ years mine took. Good luck!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

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