21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08
im so sorry that u have to feel like this. its very annoying and painful. I had about 3 weekes of this goin on this month because i was off of one of my meds, the stupid drs office kept putting me off and not calling in my approval to the insurance. But gosh darn it i filed a grievence and they hopped to it and have been VERY polite since then
One of the things my pharmacist had me try was a combo of tylenol and adivil or ibproferen. It does seem eo help me, something about them together helps. i also have been using alleve, whic has helped some to. Mind u i was still in pain, but could feel a difference. I hope this can help u.
Warn hugs and well wishes ur way!
Hi Jojo,nurse Amy,Debbie, Thanks for the response and the ideas. Jojo, yeah I know ya hate to make waves but sometimes th squeaky wheel gets the grease. Nurse 2, sorry my butt is too big to lay it on a slap of ice . But serously I'm sorry you have this too it is one more painful problem to have to deal with. Hi Deb, your right those old stand by meds don't seem to work. I could try those big heating pads they advertise on t.v. but I'd have to use so many I'd look like a mummy! Amy I know what you mean about the fingers and toes. My hands and feet will twist up and backwards and makes you want to scream. Then you stretch them out so they are the right way then ya let go and they curl right back up again.! I showed them to my mom wants when I was there and she just went Yuuuuuuuuuuuuuklol. It does look weird now if it just didn't hurt is would be all good.
well thanks guys If I come up with something that will help I'll let you know. They on't put me back on the steroids because of the transplant so that isn't an option.
t/y for answering ladies