Neurologist says no MS

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unseenwind
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 5/1/2009 4:03 PM (GMT -7)   
An update.  My daughter spent last Friday again in ER with severe chest pain.  She did see a Rheumatologist this past week and he says that she does have pericarditis and indicates that she might have Lupus.  The Neurologist says that she does have Optic Neuritis but the MRI does not indicate that she has MS.  We are thankful for that.  She is improving daily with only Advil. Just wanted to thank everyone for their prayers.  Seems to be working.
 
Susanne

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/1/2009 5:48 PM (GMT -7)   
unseewind
Sorry to here your daughter was in the er. ((((big hip hip horay))))she doing much better. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/11/2009 12:44 AM (GMT -7)   
hi ... Susanne ... what relief!
ER is not a fun place, but least you have a ray of light (no MS) phew ...
i was dx with lupus after suspected glandular fever turned out pericarditis (positive ANA & dsDNA-double strand DNA), they treated me with prednisone & nivaquine (antimalarial) and pain killer. they wanted to hospitalise me after my 2nd ER visit when i couldn't breathe ... but finances dictated and i made a full recovery from home (6 weeks bed rest). I have been managing my disease both on & off meds! and appart from feeling crazy at times it has been okay! i a still smiling & planning a family, working (when i can from home) and have a 'normal life' ... there is life with lupus.

i am in no way glad that your daughter is suspected of having lupus but am very glad that you will have some answers and a possible way forward. My best thing i have been doing is reasearch & reading, posting questions and getting insight from these wonderful people who truly do know what you & your daughter are going thru.

I am sure that she will be seeing the rheumie again soon and s/he should order a full blood work- up ... there is a list of 11 criteria to be dx with lupus ... i think you need to meet 4 of the criteria for a positive lupus dx .... altho not at the same time but once a check box is ticked it stays ticked.

Sending you much strength to help get u both thru this!
Angelique

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/11/2009 6:06 AM (GMT -7)   
Susanne,

Thanks for the update. ***** Sighhhhhh*****

I'm glad the advil is so affective on the inflammation. It worked well for me for a LOT of years. I hope your daughter's symptoms go quiet for a VERY long time!! Keep us posted on how she is doing. I'm SO glad that MS is unlikely.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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