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lilbitz
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 5/2/2009 4:11 PM (GMT -7)   
Hi ,
 
    I read a comment on here a while back about diagnosing allergies through blood work.I am having a reaction to something and can't figure out what it is I have been tested fo many things and we just don't know.I am barely eating because I keep swelling up and it scares me.I have had to use my epi-pen twice in the past and hate the scary feeling of having a bad allergic reaction.
If anyone knows where I can find this information that would be great.Thanks!!

FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 5/2/2009 7:43 PM (GMT -7)   
Hi. Just a note to wish you well. I have always had allergies, but since the lupus became so bad, they have gone crazy. My allergist did the blood testing (RAST) after all of the skin tests were very positive. I know exactly how you feel. Although I have things under control right now, I went through an entire year where I gave myself injections of epinephrine on a fairly regular basis. Thank goodness my allergist taught my husband and myself how to load a syringe and give myself small amounts of epinephrine, so that I could avoid the epipen as much as possible. The allergy syringes are very small and it is not hard to do at all. Much better than the epipen!! I still carry the epipen and the sryringes and bottle of epinephrine (I always will), but things seem better, now.
I seem to have tolerance problems as well as full blown allergies. By that I mean that if I am exposed to something that causes symptoms, then I am more likely to have more severe symptoms if I am exposed to a second thing, and even more symptoms if I am exposed to a third thing, etc.

For example, I have seasonal allergies, so my histamine/IgE level is extremely high in the spring. Then, if I am exposed to something that I can sometimes tolerate (like in the winter), it causes me to have severe reaction. This applies to foods, chemicals, medications, perfumes, cigarette smoke, and lots of others.

One thing that we found is that I am allergic to aspirin. And you know what? Acetyl-salicylic acid or ASA is a natural occurring substance in many foods. So, that can cause reactions, too.

Sorry to make this so long. I wish you well. Please be careful!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/2/2009 10:32 PM (GMT -7)   
You need to figure out what is new either in eating, drinking, medicine, laundry detergent, soaps, cleaning supplies. What are your symptoms persey? Since I have an epi pen I was able to figure out you had hives and airway swelling. Have you called your doc? What is new for you? New meds?
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 5/3/2009 10:43 AM (GMT -7)   

Hi!

Wow, how scary. Epipens are very good things yeah . It might be helpful if you got a little steno notebook and started keeping a diary with times and dates of EVERYTHING you eat, taste, breathe, touch, just till your next visit with an allergy doc, and jot yourself down a severity rating system, like, mild symptoms to life scary symptoms, nurses like the 1-10 scale, and note how often what happens. If you get a rash or puff up like a toad..... tongue take a picture!

Hope things get better soon,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


lilbitz
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 5/3/2009 10:47 AM (GMT -7)   

Thanks for the replys.I have not started anything new as far as meds or changed detergants

or anything like that.I am guessing its something I normally have and just can't figure out what.I have developed allergies the last couple of years to things I was able to tolerate my

whole life.I will call my allergist tomorrow and make an appt.again thanks.


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/4/2009 1:01 PM (GMT -7)   
How was the appt?
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


lilbitz
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 5/5/2009 4:34 AM (GMT -7)   
Hi,
 
   I'm seeing my GP today but can't get in to see my allergist until late next week.Just avoiding most things until then.Thanls for asking.
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