Hugs to Tammy "LovedbyHim"

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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/6/2009 6:47 AM (GMT -7)   
LovedbyHim said...
. . . These past few months, my dad has had a massive stroke and i stayed by his bedside to remind him to clear his throat so he wouldn't choke until nurses had time to deal with him. I had to change diapers on my dad. [img]/community/emoticons/shakehead.gif[/img] My son who has severe mental health issues, is not doing well and he calls to scream on the phone. I have been too sick to take care of my home anymore and I am selling it, to go to live with my daughter and son-in-law. The packing and giving away my beloved animals has worn me out and caused me great pain. . . /quote]

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/6/2009 6:47 AM (GMT -7)   
(((((((((((( Tammy )))))))))))

I'm SO sorry you are going through so much. I didn't want to respond to your post in the other thread (we call that "hijacking the thread") . . . so this thread/topic is just for you sis.

Any ONE of the items you listed would be hard . . . but to have all that at once is downright difficult.

Did you lose your dad? I'm sorry you are needing to move. *sigh* This darned disease takes so much from us. I can't imagine having to part with my house and my fur babies. I just feel so bad for your situation.

Sending you a big hug, prayers, some hot tea and . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 5/6/2009 7:49 AM (GMT -7)   
((((((((Tammy)))))))

Hugs and positive energy are being sent your way, friend. So many losses! I hope your daughter and son-in-law will provide you with a comfortable, safe home, but I'm so sorry that you've had to give away your pets. And your home. And your dad. And your health. Have faith, Tammy, because the sun will come out again. Please use this forum to vent - I had no idea you were going through such a difficult period. We'll be there for you.

Sending a hot cup of Rosie's tea your way.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/7/2009 6:00 AM (GMT -7)   
Thanks so much ladies! You bless me richly. My father did make it through the stroke, but it is a rough long haul caring for him. We(my 5 brothers and sister) take turns caring for him and I truly get exhausted from it. Losing my pets is very hard for me and I still cry off and on over my dog Bennie sad . Losing my home is easier, because it is too hard to take care of now. It's a beautiful little haven, but I'm just too tired. My daughter and son in law are good to me and so I hope all will go well. If not, there is always apartments. It's all good. Yes it is the disease that is altering my life, however,maybe I will have more time and enerfy to enjoy other things, like my grandchildren or going on a mission trip, or having tea with someone who needs some love. The sky is the limit if I don't have 50 chores to tend to! Thanks for caring. Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/7/2009 7:17 AM (GMT -7)   
Tammy, I am so sorry you are going through this. People just don't realize what this disease takes away from us. I can realate to a lot of what you said. Actually my father died last month out of no where. While I was in the hospital. I never even got to say good bye. But I think it is easier than what you are going through. I have 5 bro. and sis. also. I rented out my house last year and moved in with my bro and sil. I have decided to sell my house and rent something. It's hard to live with family but it has been a blessing. I've gotten to get caught up on some bills. I know I would love to go on mission trips but I live on o2 24/7 and I would be so exhausted. But I know God won't leave me this way. As soon as I figure out what his plan for me his I'm sure things will work out.
Hang in there hun, we are here for ya.
hugs
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/8/2009 5:00 AM (GMT -7)   
Thanks everyone. I lived the spoon theory yesterday smilewinkgrin .After a long day at work, I had to nap, and then I received a call about my dad misbehaving. I went to see my father to have a talk rolleyes   with him and then returned home to get my house worked on. People who want to look at my house  and goats tomorrow, don't need to walk through knee deep grass, so I had to mow. I then fed the animals, took a bath and ate icecream for dinner. I craweled into bed with pain between my shoulder blades so bad. I put a heating pad on and waited for the meds to start working. I thought to myself, I never thought I would be in this position when I was a young girl. I was a runner, training for the Boston marathon!!! Now I have pain and muscle spasms that take my breath away. I know I need to let go of what I was and embrace who I am now.  It is a struggle .Now Is not all horrible. I met new friends like you. I am going to have a deep relationship with my beautiful 2 yr old grandaughter as I live with her and love on her. Soon, when I get home from work I can sit and rest! How I long to rest more. In truth I beg God to let me not have to work such long hard hours. I don't know what to do about working. My friends all look at me and say, "It's time for you to look at disability." Some days I believe that more than others. I don't know what to do, so I just put one foot in front of the other until the day is over. Sometimes I cry so hard because the work is too hard when I am so sick. Sometimes I think, "I have brain fog so bad, what if I mess up on this report?" I make more errors. Etc. God help me to get through this mess. I feel guilty whining like this when others have it so much worse. Carol has it so much worse. Bless all of you abundantly! Tammy 
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/8/2009 5:20 AM (GMT -7)   
Lovedbyhim
I'm sorry you are dealing with so much!! can you have someone come over to cut your dads grass. I know about the pain and brain fog I was making mistakes when I was working and the pain was so deep into my bones I cried almost every day. Maybe it might be a good idea to go out on disability your body is telling you to slow down you do need good rest. Hope your dad will have a better day today. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 5/8/2009 5:54 AM (GMT -7)   
((((Tammy)))) I'm so sorry ur going thru so much at once. I can relate to lots. I have advice that I think will help u long term. Go to the Social Security disability web site now and print off the list of what's needed to apply. Start gathering that info little by little right now, including all medical records and make 2 copies of everything. That way, when u must quit it will be much easier to get ur disability packet ready and u will only need to update ur medical records. I'm sending prayers and positive energy. Ur crossing a very long bridge right now and I know it's a terrible struggle. The end of the bridge is there, just keep walking okay Sis? Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/8/2009 5:58 AM (GMT -7)   
Tammy,

It sounds like you'll answer your own question soon (about going on disability). If new living arrangements give you more rest and you feel better . . . GREAT!! If not . . . time to make some decisions.

Spending time with gd sounds wonderful!! They are such good medicine!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/8/2009 8:13 AM (GMT -7)   
Tammy,

Have you brought up the subject of disability with your doctor?

You really do have your hands full. I've learned that there is a fine line between getting enough exercise and overdoing it. If I don't get enough, my body feels it, but if I get too much, I crash and have a mini flare. Had I done as much in one day as you did, I'd be six feet under! Or at least I'd wish I were!

It sounds like living with your daughter and her family will bring you some joy. I hope they are supportive and understand what you're going through. You're blessed to have a 2 year old grandchild.

Hope you hang around.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/8/2009 11:11 AM (GMT -7)   
Y'all are makin me cry!!! Such sound advice and wonderful words I need to hear. I will begin my long walk across the bridge and begin gathering all my records. Thank you all for your encouragement. I am so VERY tired and as the stress and the day goes on, I can feel the pain break through the lyrica. Gosh I'de give anything for one day of no pain, rest and peace. I know so many are so much worse than me and so I say this with some guilt for whining. Please forgive me for wallowing in self pity. I just gotta get to acceptance at some point here. That way, when the big things come I will be ready rolleyes . Love yas so, Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/8/2009 8:07 PM (GMT -7)   
Hi Tammy:

I'm so so sorry that you're having to deal with so much pain, exhaustion, and losses in your life. This disease is hard to deal with at times. I just wanted to encourage you to hold on and continue to forge ahead. I know how are it is to cope with things.

Just for some background info on me I've had lupus for 22 yrs now and I recently found out that I have RA pretty bad about 2 years ago. I've had fibro since 1995 and my lupus was so so bad I took cytoxin to treat my lupus and I ended up getting MDS (blood cancer) it's known as smoldering leukemia. It will continue to advance into full blown leukemia over the next few years. I was told straight up that I'm going to need a bone marrow transplant if I hope to continue to live longer.

I know that we are all struggling with our various issues. I can certainly understand the feeling of wanting to give up. I'm on oxygen 24/7 and I feel so sick all the time, I believe in miracles but I don't think I'll be getting one anytime soon. So what do I do when I'm in pain so bad that I can't think straight, and so exhausted that I can't move? I remember I've got a daughter to finish raising and I have all of you here to support me and love me.

Tammy don't give up, I know it's hard to accept that we need to be on disability. You're a wonderful person and you bring something special to the world and you are a shining star in this universe. Hang in there know that we're all here for you and we truly understand how you feel. Please take care and enjoy your grandchild. Wishing you a wonderful Mother's Day.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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