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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/6/2009 12:55 PM (GMT -7)   
It is not the best news which would be Alexander coming home but it is good news. Alexander is finally going to be placed with my grandma. That means he will be with his sisters. It also means they can't adopt him out to strangers which means they will make more money by letting him come home eventually. Add in that my husband finally got the inheritance he was told about this time last year and we have had a good week. We are moving to a better place because he got so much money. I was able to pay our bills in full for once. We will not have to worry about money for a while even with moving. I am thinking about maybe trading in our van toward something better too. I dunno, it depends on what it would take to fix the problem it has- the speedometer is dead. Not cool. I cannot believe the amount of the check it is more money than I have ever seen at one time in my entire life. It is 2 years worth of take home pay for my husband. Considering he makes 8-9,000 a year take home that isn't much to most people but to us it is a fortune. I will look at the 3 places I liked tonight with hubby and then tomorrow a friend who is a contractor will look at the places and tell me which is the best deal and what kind of work they require. It will be another trailer but heck it will be much much newer and won't need 10,000 in repairs. The 3 places I am looking at cost less than the repairs on this place. I am excited.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/6/2009 9:03 PM (GMT -7)   
I looked at the places with my husband and we found the one we really want. Tomorrow a friend who is a contractor will look at that place and tell me if it is worth it and if it isn't he will look at the other places. Negotiations about price will take place tomorrow with closing tomorrow night. We will begin moving stuff immediately. We are going to take the month to do the move over but we might be able to be fully moved by the end of next weekend. We will see how far we get this weekend. I am really excited. If you can't tell.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/6/2009 9:26 PM (GMT -7)   
redrose
I'm so happy for you that you came into the big bucks, that will help out a great deal. You sound so happy and excited I haven't heard that from you in such a long time I'm also glad your grand ma will be taking care of Alexander. My prayers will be that you get your baby back. Good Luck
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/7/2009 3:51 AM (GMT -7)   
Hey that is great news. Todays Alexs tests....he's in our prayers. Let us know how it goes.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/7/2009 11:16 AM (GMT -7)   
thanks!!!! We close tomorrow. It will take almost all the money we got but our friend said it was worth double the price so we are going for it.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/7/2009 9:36 PM (GMT -7)   
The doctor refused to do the test because there is no family history.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/8/2009 8:30 PM (GMT -7)   
Go back to the doctor and demand a second opinion. There may not be family history, but I'm sorry any and all tests should be done for his welfare. In fact, if it was my kid, I would be looking right at him and saying "You refuse to do a test on my son because there is no family history you said? Further ado, regardless of family history or not you have to treat any patient that comes in. And here you are endangering my sons life because in my heart I know something is wrong and you are refusing to help me find that problem. How would you feel if this is YOUR kid doctor? Would you want all the tests ran because you know something is wrong? Would you fight for the wellbeing of your child? Because of your actions, I am now demanding a second opinion and considering on turning you over to the medical board." But I worked 5 years in health care, I know the crap they pull, and frankly I dont and refuse to stand by it. When he tries to respond, listen to what he has said then if he tries to say he can treat Alex say "Doctor, I had confidence in you, and you broke that confidence the moment you refused to run tests on my son. How am I going to be sure you wont do this again? How will I know you arent going to mislead me? I'm sorry, but I can't trust you anymore. I need to look out for my children's safety and well being and health just like you would do. Bye." And walk off then get another doctor. But I am the smartalic.... :P I wouldnt turn them over to the board, but the mere threat and you being straight forward lets them know its uncool and not right. Speaking of children, I must go tuck in Dakota now.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/8/2009 11:52 PM (GMT -7)   
I was not allowed to be at the appointment. The test was COURT ORDERED and he still refused to do it. I don't want to delay court over this because it would mean even longer before he comes home. I need to get the doctor's number and call and ask what the h*ll he thinks he is doing. I know darned good and well something is wrong because how else did my son get 5 fractured ribs when NO ONE has been rough with him. The only accident he has had is falling off the bed and supposedly that could not possibly have caused the breaks where they are. Well, no one I repeat NO ONE abused him and no one accidentally squeezed him hard enough to break ribs. So SOMETHING has to be wrong with my son. I took enough meds while pregnant that any one of them could have affected his bone health. Sorry, but if I go on I will lose the happiness I have from knowing our new home is ours and that next Saturday we will move the last of our stuff into it, we would do it sooner but there is a lack of help to move and no internet or cable until next Friday. Lovely. Oh well, it just means I can set up my new home any way I wish. I like the idea of that. I can experiment with what is already there before the major furnature is taken over so I have the ideal setup when all is said and done.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 5/9/2009 12:15 PM (GMT -7)   
Hi Redrose,

I am so sorry about what that darn doc did. I have looked up some things and you are so right about what your meds can do to your baby's bone density while you are pregnant. I am wondering if you can get some information from your rheumie or the specialists that treated you with these drugs about what the affects can be on your child's health during pregnancy while on these and so they can test Alexander for these. Maybe taking these to your lawyer you have during this investigation so he can hand these in during the hearing can help. Also a bone density test??? There is one thing that if you were on Imuran called Pancytopenia can happen or baby's can develop Osteopenia or similar issues due to these meds with the high levels of prednisone you are on too I am just thinking this and then if he has something like this and then you picking him up that would coincide with the fractures???

Just a thought.

Good luck on the new home and paying off your bills

Leta wink
sle 01 w/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D def 4/07, Iron def ferritin 8/07, Chronic migraines 01.Meds- baclofen 20 mg, prenatal tabs, potassium, vit D 50,000, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 50mgx3, motrin 600mgx3, famotadine, darvocet 100x2 prn, amitriptyline 25mg, maxalt, topamax 150mg, tigan


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/9/2009 4:49 PM (GMT -7)   
Court ordered, it simple then. Call your lawyer up and say the doctor is refusing to do the test and it is a breach of not only the welfare of your child and health but as well as a court ordered document. Yoour lawyer will have a field day with it. And you need to file a grievance, as well as the grandmother (I believe you said it was grandma who has Alex right now, pls correct if wrong).
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/9/2009 10:24 PM (GMT -7)   
I saw a program on what your going threw, pertty sure it primetime, the child had broken bones I think it was the ribs, they took the child for abuse, well she got pregent again same thing with that child. It was the second child that's when they all starting listening. I hope you can get help to have those form releast. Wishing the best for ya.
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 

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