What else? well, got my cd of all my imaging studies from mayo for the neuros and whomever else around here I'm going to, as I'm sick of mayo. They did not tell me that I had nodules on the left side of my thyroid, screwed up the cancer test, didn't tell me I had a pinched nerve, or a retroaortic renal vein--nutcracker syndrome.
It had to be me, and rare. It can lead to nephrotic syndrome and is probably why my left kidney is bigger and my left leg is so painful and swollen and my left flank hurts and it has hurt to pee for over a year now.
I kept telling them that it felt like something was "strangulated", I just didn't know how to describe the feeling. So now I have to see if a doctor will find me worthy of surgery to prevent future problems, my liver being bad, don't need a bad kidneyor two. Right now, my right kidney compensates, but the pain and the leg problems are keeping me from walking much at all. I am pretty sedentary, which is very bad.
My sis, an RN says the surgery really shouldn't be bad, they just put a stent in, cutting the large renal vein and placing it in front of the aorta instead of behind it. Docs think I'm nuts when I even mention it. They think I made it up.
It is a birth defect in me, the reason why I had an IVP when I was four and tons of kidney infections. Instead of the vein in front of the aorta becoming the renal vein, the back vein developed and the front one disintegrated. I was an embryo then, wasn't much they could do. So now I have like 15 things wrong and still no lupus diagnosis, though I think they'd rather just call it one thing, lupus, instead of all this crap, but they don't. And I'm lined up for injections in my back for the leg pain. That should be just peachy on the kidneys and adrenals, both of which are affected by the vein problem, but the docs "can only focus on the things that are in their field" and they said I need this, that it will fix the pain. I do need steroids, but would prefer a pill taper. I hate the up and down of injections. I have gone into addisonian crisis before, according to the ER here.
Oh well, only goes to show, it pays to get your own labs. My boyfriend said he knew I had nutcracker syndrome because I'd been bustin' his....well you can figure the rest.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids