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honbunnie
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 5/7/2009 8:36 PM (GMT -7)   
Good Evening
I am Jill.  40 yr old wife, mom, registered nurse.  I was "oficially" Dx with Lupus on Monday.  I have been lurking here for a few months because I pretty much diagnosed myself...hehe.  I have Psoriatic Arthritis and have been on Remicade since August.  My Rheum is optimistic that my Lupus is induced by Remicade and will subside in a couple of months.  He did warn that it may not go away.  It is just a wait and see deal now.   I have been out of work for a few weeks with all the horrible aches, pains, exhaustion, fever etc.....  Have also dealt with some quacky doctors.    I finally found a competent Rheum on round 3.  Very frustrating.  Especially when you are sick. 
Basically dealing with alot of what you all deal with .  This forum has helped me so much with gathering information.  I am grateful to everyone that has shared their story.
Jill

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/7/2009 10:08 PM (GMT -7)   
Welcome honbunnie. I lurked around the forum before I started posting, I find that there are heart warming people on here.. I did hear remicade can induce lupus. I hope your rhummy is right,are you on any meds. when I'm real bad with my pain I use a heating pad, lidoderm patch, celebex. Other people will come on and tell you what they use.. Thanks for resposding on the diabetes forum. Take Care I have been very tired myself.
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/8/2009 6:03 AM (GMT -7)   
Welcome to the forum Jill !!

I do hope your lupus is temporary!! There are several members in the Crohn's forum who have drug induced Lupus too. *sighhhhhh*

Glad you found us!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/8/2009 7:55 AM (GMT -7)   
Jill,

Isn't it frustrating to know what you have and yet you can't find a doctor who will take you seriously? It took me three rheumys as well.

I do hope yours subsides. And by the way, you don't have to have lupus to post here. I was posting before I had a diagnosis & lots of others do too. That's when I needed this forum the most.

I'm glad you're here. Let us know how you get along.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/8/2009 8:14 PM (GMT -7)   
Hi Jill:

Just wanted to welcome you to the forum. I too hope that your lupus is temporary. I'm kinda worried I've got both lupus and RA and my doctor wants me to start on Remicade in June. I sure hope it doesn't make my lupus worse. There are many great people here and we're happy to answer questions at anytime. Please take care and welcome to our family.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


honbunnie
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 5/8/2009 9:04 PM (GMT -7)   
Thanks to everyone for the warm welcome.

My meds for Lupus are Prednisone 10mg and Plaquenil 400mg. Last dose of Remicade was 3/31/09. I am also on MTX 15mg for last 8 months.

Barbara , please do alot of research on Remicade. I think the side effects go grossly unreported. It can be a miracle drug for some and a nightmare for others....ugh!
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