hi ... greetings from a newbie to this board

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Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/11/2009 6:06 AM (GMT -7)   
i just wanted to say hi ... i will try be as brief as possible blush

i was having a lot of trouble coping a few months ago, i am going thru all sorts of physical issues (as most of us) but my mind can be the most dangerous ...
i decided to join some message boards and have found that just reading threads can be like threads of hope in a sometimes dark place ... so thank you for all the honest & open sharing ... it is not possible to be so open with family & doctors ... some try but cannot understand (i mostly don't hold this against them ... when reason wins the internal debate)

so thank all for for helping me keep some sanity wink

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/11/2009 8:46 AM (GMT -7)   
Angel,

Welcome to the forum! I believe you are in good company here if your mind is playing games with you. Coping is something we all deal with and some days it's much harder than others. And even when reason wins the internal debate, emotions keep swirling around to mix things up. That's perhaps my toughest strugle.

That said, I'm sorry you felt it necessary to be brief. We write books here when we're feeling especially down. I hope you'll write back and tell us more about yourself and your condition.

(((hugs)))

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/11/2009 1:32 PM (GMT -7)   
Thanks for sharing that MJ, It IS great to have a place like this to share with other who understand!!

Glad you found us . . . and welcome to the forum!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


SumrAngel 1
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 5/12/2009 2:55 PM (GMT -7)   
Hi I don't know if you remember me I had a similar name but couldn't seem to get the password since my email address changed. I have had this user name awhile but haven't posted in awhile. My name is Carol. I had a ministorke in 2003 and for 2 years had symptoms of seizure disorder that went misdiagnosed as anxiety/depression. in 2005 they diagnosed seizure disorder. I am on lamictal for the seizure disorder and for the most part don't have any symptoms. My symptoms weren't the fall down type of seizure, my brain felt almost like it was shutting down. Hard to explain... but I guess almost like a balck out was about to happen but it never did. I did have another mini stroke in 2007 and have been doing well with the neuro issues lately for awhile I had my foot would ocassional drag and I would trip once in a while. That stopped. I have had mministroke symptoms that occurred between 2003-2007 that usually resolved itself. I have a bad habit of not going to the ER right away. Which is really bad. So I believe I have had more than the two diagnosed mini strokes I was hospitalized for. But lately I have been doing good with respect to the Neuro syptoms. I forgot to mention after my 1st mini stroke I was told the symptoms I have and high ANA test results, and white spots on the brain are probably from Lupus or MS. Neither has yet to be diagnosed. My symptoms haven't gotten worse, and nothing new has occurred. Besides neuro syptoms I have dealt with Hodgkins lymphoma (cancer) a relatively treatable cancer. but it does have the possibilty of returning and of being persistent in some cases. Mine has returned. I am going for chmeotherapy for it. They want to do spinal infusion -infuse chemo into spine so to prevent cancer from spreading to CNS. Iam very nervous about this They say its pretty much like a spinal tap or is one but drug is infused. I have to go 2xs a month if I decide I want to do this. I already have a regular chemo treatment which I would still continue. I got 3 xs a week -every other week. So far I am doing ok but cancer has been stubborn. Its in my chest wall,nodes in arm pit neck.and lungs. I am still working which is hard but I have no choice I am supporting myself. I did get my BS in Biology and minor in Chemistry and work as a clinical lab tech. taking a couple grad courses. Really would like to get into A master's program or Masters/ PhD program. Most grad schools want GRE scores. I would have to take the GREs. I have had to change the way I learn since neuro issues but with focus I think I can do it. Maybe once chemo is over.
I just wanted to catch up I don't know if you remember me or not? I remember Rosie, Lynwood, and I recognize other names too in the forum. I iwsh they had a forum for Hodgkins or a general cancer forum. Hope everyone is doing ok

Carol (Sumr)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/12/2009 5:55 PM (GMT -7)   
Hi there Carol, welcome back! I remember you from before - the user name might have been Summer? Anyway, glad you are able to make progress with school and are now self-supporting! Good deal!

Take care,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/12/2009 8:12 PM (GMT -7)   
Hi Carol . . . were you SummerGardenAngel??? I do remember you as Sumr when you couldn't get back in under your first name. Sounds like you've had some rough patches. I'm glad you are feeling better recently. Welcome back! Sorry you haven't found just the right forum for your current issues. When is your chemo completed?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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