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bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 5/11/2009 5:47 PM (GMT -7)   
I was just wondering has anyone here been in Remission from Lupus? If you have how long? and when did it begin? Just curious.

<FONT color=blue>16 years old. Lupus, and Raynauds.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5797
   Posted 5/11/2009 6:26 PM (GMT -7)   
My dr won't say "remission" but he says my lupus is "quiet". For almost a year I have had no inflammation indicators in my blood work and no positive ANA tests.

This does *not* mean I have the energy or cognitive function to regain my former life, and I am still on a handful of medications, but I am much much improved from my previous state.

Also note that I the only organ involvement I had was cognitive (bad enough to show up on neuropsych testing and practically make me unable to care for myself), mostly basic joint and muscle pain, with neuralgia in hands & feet.

I begin improving during and after 18 months on Cellcept - prior to that Imuran had no effect on me.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


TyMe2009
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/12/2009 6:18 AM (GMT -7)   
I was diagnosed with lupus (SLE) about 7 years ago after a flare (polymyositis) I was taking methotrexate and I have been doing well so last year i stopped the methotrexate and I am currently on 5mg of prednisone daily. I never have "normal" labs and my doctor says I have a highly positive ANA however my doctor and I only work off symptoms not labs because I havent had an actual flare since about 4 or 5 years ago. So I wouldnt say "remission" I would say I have had my lupus symptoms under control since my last flare 4 or 5 years ago and without methrotrexate for about a year and a half.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 5/12/2009 8:33 AM (GMT -7)   
Tryme,

That's so encouraging to hear, and it's what most of us dream of.

I believe my lupus is also quiet, though my rheumy hasn't said that. I feel lousy all of the time but I believe I battle more depression that I let on. I've lost my "get up and go."

You're new, TryMe, and I welcome you to the forum. Hope you'll stick around. We need to hear from folks like you who have happy endings!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 5/22/2009 5:41 PM (GMT -7)   
Hi.  A friend of mine has Lupus and Class 4 Nephritis.  I talked to her today for the 1st time in a long time and she told me she has been in remission for a year and a 1/2.  She still gets aches and pains, but her kidneys are doing very good.  This is good news, as her last flare was horrible and it lasted for a long time.  She had to drop out of school for a semester and lost most of her hair due to everything including her meds.  She's pleased that she's doing this well compared to the way she had been for so long.  Keep your hopes up!  Staying positive and just plain taking care of yourself can have a lot to do with the way you feel everyday.  I'm so happy for her and that makes me believe that I will also be in remission once I've tapered off my meds (another 6 months though). 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 5/28/2009 12:30 PM (GMT -7)   
My doctor has told that mine is....after ten years. A lot changed for me when I went on cymbalta. Now, I just have other issues to take care of....
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 5/28/2009 3:07 PM (GMT -7)   
I went into total remission after my first year of treatment for 3 years. I took no meds and had no symptoms! I came out of remission in 04 and it's been a rough ride, but i'm never giving up on remission or 'quietness' or disease burn out!!!! Judy
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