Triple Appointments tomarrow

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/12/2009 6:21 PM (GMT -7)   
Go to my radiologist tomarrow to see if I need to continue radation (I am pretty sure the answer is yes I need more, as my pcp told me the tumor only shrunk a tiny  bit). Go my oncologist appt tomarrow (to hear another yippie we dont know what autoimmune disease you have). Go to my presurgery appt tummor (that has not been put a date and I just do follow ups as the radiation is interfering with when they can operate).
 
Yippie yay.....not
 
Keep me in mind, I will post back tomarrow afterwards.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/12/2009 7:15 PM (GMT -7)   
I really hope that your appointments go better tomorrow than what you expect. I also hope you get good news at some point.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/12/2009 7:57 PM (GMT -7)   
Oh, my. Just the thought of 3 such appointments in one day makes me tired. I will think of you, and I hope you have a supportive adult available to take you.

Good luck, remember to take breaks to eat and rest and drink water - it'll help keep all that stress from seeping too deeply into your system.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


Angel MJ
Regular Member


Date Joined May 2009
Total Posts : 36
   Posted 5/13/2009 10:44 AM (GMT -7)   
phew ..... 3 in one day ... at least hope they are done for a bit!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2009 1:39 PM (GMT -7)   
Yowsa!! I hope you managed alright today Desiree !! Will be thinking about you and watching for an update. I'm sorry the tumor isn't shrinking faster. *sighhhh* I hope the radiologist and oncologist can give you some encouragment.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/13/2009 7:24 PM (GMT -7)   
Desiree, I hope you get through all those appts with some strength left. At least, you will have each doctors opinion fresh in your mind. Wouldn't if be great if they would all get together in one room and you could do it that way. I always feel like we ae playing telephone. I will pray the tumor responds and shrinks and send good wishes your way! Hopefully, they will be able to get it very cleanly and completely with as little damage to you as possible.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/14/2009 1:48 AM (GMT -7)   
Sorry it took me so long to post the news, I took a nap smhair    I was tired. I've found with everything its I'm more tired and can't do so much anymore. Are we all like this? Radiologist--I graduated radiation for at least 6 months!!!!!   Surgeon - Decided to operate, and will schedule 3-8 months away (something about needing to talk to the radiologist first cuz radiation could interfere). Oncology- I knew the day was too good to be true! He decided to have me do chest xrays, blood work, peeing tests. He's leaning to confirming the Wegner's disease. He says it looks like I will need agressive treatment (I sure hope I dont have to do chemo again). I am to call the doctor on Monday to find out my results. If I pass the xrays, blood and pee tests, I can have a 2 month break (or so he says).  My eye, where the tumor is, is super duper sensitive to eye drops. Nurse didnt believe me til she saw. Ever get in so much pain your grabbing the painful spot, rocking, instant tears and stop talking and gasping for air cuz the pain is so intense? Trust me, its no joy. I scared the nurse at least. She felt really bad for putting eye drops in. I had to even take a pain killer shakehead    Well thats my story, til Monday!
smurf  
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/14/2009 8:23 AM (GMT -7)   
Desiree,

You sound like you're in good spirits, which is amazing considering all you're going through. I hear that it's important to catch Wegener's disease in the early stages so it sounds like you have a good doctor. I'm sure a 2 month hiatus will be a real relief. Let us know what you find out on Monday.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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