Interesting Eye Exam

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puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/14/2009 1:38 PM (GMT -7)   
Hi All,  Just got back from my annual eye exam.  Everything was all clear, no toxicity or damage from the plaquenil or prednisone, YEAH!  I sometimes get weird underwater vision in my peripheral vision and I asked him about this.  He said that it's the begining of a migraine headache.  I don't get the actual skull busters I used since starting propanolol, only about once a month or so, but apparently I'm still getting the migraines,  they just don't hurt.  I thought that was interesting and worth passing along.  All in all it was a good check up, my near-sightedness hasn't even changed a bit in over four years and my eyes are in perfect health.  Kinda like my PCP said that if it wasn't for my auto-immune panel, my bloodwork showed I was in perfect health.  I'm pleased that I have no major organ involvement and that my eyes and blood all look healthy.  It's just weird to feel this crappy and be told I'm in perfect health, oh, except for the fact that I have Lupus.  Well, all I can do at this point is count my blessings, pray for the future and budget my energy wisely.  Hope everyone is hanging in there.  God Bless.     

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/14/2009 2:35 PM (GMT -7)   
glad your eye exam went well. I too got a clean bill of eye health but my vision actually improved somewhat. My blood always looks fine as well. It is weird to have all the markers of good helath and feel like crud. Definately budget your energy, I am having to do that more lately as we move. It is always nice to hear good news though I wish my migraines didn't hurt anymore you lucky dog.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/14/2009 4:07 PM (GMT -7)   
Redrose, I had horrible migraines 2-3 times a week until my doc put me on that propanolol. It's a blood pressure med that keeps the blood vessels open and flowing. Ever since I started it, within two days the headaches were gone. I got really brutal ones too, the kind you just want to sit in a quiet, ice cold room in the dark, only problem is that I have two young boys 2 and 6 years old. They are anything but quiet. Now it takes being in the heat too long, sun exposure or bright lights, like today to give me one. It's not so bad today, took the Lortab soon enough to keep it mild. Good luck with finding something for the headaches. God Bless

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/15/2009 4:21 AM (GMT -7)   
Hi Jennifer, Yep it's amazing how crappy we can feel and have so little to validate. Well...I AM VALIDATING IT FOR YOU smilewinkgrin ! Dose this help just a little. Here's the deal, the next time i go to the doc and feel like crap, you send me when of these smiles and validate that I am truly sick! This is the weirdest disease! Frustrating! God bless ya Jennifer. Keep believeing and putting one foot in front of the other. I think there should be T shirts with that printed on them. "We put one foot in front of the other." Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/18/2009 11:14 AM (GMT -7)   
Thanks Tammy, it is so hard when we're told we are in great shape, but then we can't even get out of bed in the morning without pain medication. I thank God everyday for my two beautiful boys, they are so much work, but if it wasn't for them I wouldn't even bother to get out of bed. I wish I could post you guys a picture, they are just so cute they make me smile just looking at them.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 

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