Way overwhelmed! Can anyone help??

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SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 5/18/2009 1:00 PM (GMT -7)   
Hey everyone!   :-)
 
I need some help or advice- or some advice would help.  I am in the beginning stages of getting a dx (hopefully).  My GP is amazing and has been really great.  But I have been to a pulmonologist (he was a nightmare) and am waiting to see a rheumy (I jinxed myself on an earlier post about how in small town America waiting for a specialist wasn't a long wait- she can't see me for 2 months- zipping my lips going forward!).  But my GP wants to see me before then.  I guess to go over the specifics of my recent bloodwork (when I called the nurse said that they showed high inflammatory markers but that the tests were pretty generic and that seeing a rheumy would be a good next step).    So now I am waiting a couple of days to see my GP.  But here is my dilemma.  Right now I have (another) sinus infection.  Can that be part of a flare?  I had a terrible rash - whenever I sweat even a little I get a terrible rash.  Its the same as the kind that I get when I dare go into the sun for any kind of length of time.  I am tired (of course) not just tired.  I am exhausted.  I am on more pills than I care to be on (200mg Zoloft, Medrol pack, Atenelol for blood pressure and Yasmin for migraines)  I am in dx limbo and bodily Hades.  Now because of a big systems upgrade at work I am supposed to go 4 hours away with some of my fellow managers for 12 days on a shift that is completely opposite of my normal shift (I don't tolerate any sleep schedule changes I work nights- no sun- and my body seems to like it better).  And I just found out that my "room mate" for the trip snores- badly (her admission- "I hope its not a problem"- Hello?  When is that NOT a problem????)  I am afraid that all of this stress is just going to make matters worse.  So my questions are:
 
1)  I am terrified to go on this trip so far away from Doctor while I still feel so bad.  Any opinions on whether I should try to get my Dr. to write me out of this?  Or am I just being a paranoid baby?
2)  Does anyone get sinus infections all of the time?
3)  If I do wind up going- any advice on coping?
 
Thanks guys!  (This is an emergency or I wouldn't have use red- I am so overwhelmed!)
Thanks!
Trish.
 
"It is what it is"- Grace Lindsey- my Grandmother.
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7023
   Posted 5/18/2009 2:00 PM (GMT -7)   
1) I am terrified to go on this trip so far away from Doctor while I still feel so bad. Any opinions on whether I should try to get my Dr. to write me out of this? Or am I just being a paranoid baby?

I think getting out of it would be an excellent idea; if it's at all possible. When I felt the way you describe, if I tried to do a trip like that, I would only feel worse...much worse. And for me, I've found that the worse I let it get the harder it is to reach any sort of normal again. You are not being a baby, you are paying attention to what your body is telling you.

2) Does anyone get sinus infections all of the time?

I don't at all, but I know that lots of lupies are vulnerable to them.

3) If I do wind up going- any advice on coping?

Get yourself your own hotel room. Even if you have to pay for it yourself, you and your health are worth it. Make sure you eat and sleep as normally as possible. I know exactly how impossible that is when a team is doing a big systems upgrade...thus my vote in 1) above.

<I was once part of a team doing a big system redesign & intragation far away - 9 months of 14 hr day 6.5 days a week...yeah, 20 yrs later I do think that's part of why my lupus became active.>

Take care of yourself,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/18/2009 3:36 PM (GMT -7)   
Trish,

As usual, Lynwood's advice was right on.

The best medicine for me is taking care of myself, listening to my body, and saying no, without apologies, when I don't feel up to doing something. No job is worth ruining your health. And no one has the right to try to shame me or guilt me into doing something that will be detrimental to my health. By all means talk to your doctor and get a note.

Good for you for listening to your body.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/18/2009 7:51 PM (GMT -7)   
One point to add to the above. Call the new rheumy's office and tell them that you'd like to placed on the cancellation list in case another patient cancels. This might move you up the list to get in sooner.

Sorry you have such hard decisions to make . . . you are really in a tough spot. I'm glad Lynnwood and Patty chimed in.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/18/2009 7:53 PM (GMT -7)   
Hey Trish...I too would if possible get out of the trip, also being a work trip, I doubt there will be much time to rest and throwing your body for such a big change (schedule change) probably isnt a good idea. Hopefully your work will be flexible and understanding!!!
 
about the sinus infections...I am on prednisone and cellcept and since I have started them both together I have a chronic Sinus infection. For a few months now I would say I have a sinus infection more days out of the month than I don't. Rest, rest, and get some more rest whenever you get a chance! Hopefully the medrol will start helping with the inflamation, I know when I was on the IV's of it, it became my best friend :-)! Hope you start feeling better quick!!!!

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/19/2009 6:49 AM (GMT -7)   
A reminder to everyone. Use a Neti Pot every day to flush your sinuses. This will help keep your sinuses clean and helps to ward off infections.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


n2chase
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/19/2009 7:08 PM (GMT -7)   
Nothing is worth risking your health over. Get out of the trip. The only thing that helps is rest -- so take care of yourself first.

With respect to the sinus infections, I never associated the two but it makes sense. I am on prednisone, celebrex, enbrel, methatrexate, folic acid --- all immunosuppressants -- and i have had a sinus infection for months.
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