Question or 2?

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Debbie Downer
Regular Member


Date Joined May 2009
Total Posts : 62
   Posted 5/18/2009 4:23 PM (GMT -7)   
I have a couple of questions.

1. At my endocrinologist appointment, he noted a few things to me and I, not thinking, didn't ask him to explain. He said that my ANA was positive. I looked that up, so I understand that. He said that my thyroid is rough textured. What does that mean? And, he commented about my feet being callused and rough on the bottoms. Does that mean anything?

2. I'm leaving for Jamaica on Saturday morning for 4 days. I'm a little nervous because there will be lots of sun, alcohol, and very little sleep. All of which I do not tolerate well. I don't want to get sick, but I don't want to be the "debbie downer" as my husband so often calls me. I really want this to be fun. My husband and I have never been away from our kids for that long. We will be there for a wedding, it's an all inclusive thing. It sounds like so much fun, so why am I dreading it. I know I'm going to break out in rashes. I know I will push myself too hard. Anyway, just wondering if anyone can give some advise to keep my health under control. I do not have a diagnosis of Lupus yet, but do have some kind of auto immune thing going on so my endo seems to think.

3. What can I do in the meantime for the pain I have in my joints? Particularly my knees and neck. I see my PCP tomorrow. Is there anything I should ask for?

4. I am getting a pap tomorrow as well. I would like to start birth control again. What do you recommend I take?

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/18/2009 7:44 PM (GMT -7)   
((((((( Debbie )))))))))

Welcome to the forum!! So sorry about your nick name. Very sad. You will need to make YOURSELF a priority. You can ask the bartender for something non-alcohol . . . something you enjoy. When we did the all-inclusivies, I ordered cranberry juice and club soda with an extra cup of ice, the cups are smallish, so if you drink a few sips and pour it over the fresh cup of ice, you have a whole drink . . . no one knows you aren't drinking alcohol unless you tell them.

The sunrise and the sunset will be a beautiful part of the day and you won't be exposed to too much UV. But if you go to bed too late, the sunrise is too early. I brought a man's long sleeve white shirt. When you wear that over a bathing suit, it is surprisingly sexy. I'm not a thin woman, but I got several compliments from strangers and the long sleeves even protect the back of my hands. You can easily find them in thrift stores or in a discount store. Find a really nice hat and bring a golf umbrella with you.

Make sure that you feel confident in your new look. Your hubby will "get it" eventually. My DH is really good now to remind me if I forget the umbrella or the long sleeve shirt. It took a while for everyone around me to realize these were legitimate needs, but they do come around eventually. Just make sure to be confident about your needs. . . and make yourself a priority.

The pill . . . "could" make your inflammation worse. Just watch for any odd symptoms. Also, be careful that the pill doesn't wreck your sex life. It can really lower your libido. Wouldn't want to wreck the good mood on a great vacation.

Be careful around the water because the UV light can reflect UP from the water and the sand . . .so you need to hunt for some good shade. The golf umbrella really helps on the beach . . . but you still have to be very careful.

Ibuprofen (Advil) is a fairly powerful anti-inflammatory if you take it 3 or 4 times a day. It may not do the trick on the first dose, but it can effectively relieve moderate pain from inflammation if it is taken regularly. Naproxen (Aleeve) is also a good choice . . . read the label . . .I think that one is twice a day.

I hope you have a romantic getaway!!! Romance also makes DH more protective of your needs. Hee heee hee . . . Just say, "Darling, you wouldn't want me to be too tired tonight, would you??" Hee heeee Don't be manipulative . . . but taking care of yourself is good for him too. See?

Glad you found us!! Keep us posted!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Debbie Downer
Regular Member


Date Joined May 2009
Total Posts : 62
   Posted 5/19/2009 8:55 PM (GMT -7)   
Thank you so much AlwaysRosey for your advice and encouragement. I appreciate your thoughts. I will definitely try the long sleeve white shirt. :-)

LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/20/2009 4:54 AM (GMT -7)   

Hi Jenna29,

I hear you. I remember when i was with my husband and getting sick a lot, i felt like hiding and not joining in everything, because I truly felt horrible when i did. There was a lot of depression, FROM the disease that was not diagnosed yet. My thyroid was being hit by the Lupus. I eventually was diagnosed with Hoshimotos thyroiditis (can't spell it) smilewinkgrin .The thyroid looks like a lumpy sack of potatoes and I was low on thyroid hormone. I started to feel so much better when I was given thyroid meds. You are not "Debbie Downer" sad . You are sick Sweet Girl and soon you will fell better. Until then, Slather in sunscreen,  take little naps when you need, and live, laugh and love as best you can until you feel better. I pray you feel better soon and that those who love you will be patient and understand until you are feeling better. Tammy


I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 5/20/2009 6:16 AM (GMT -7)   
Jenna, I am glad you are posting here as well as in MS.  AlwaysRosie is so helpful and smart! 
 
LovedbyHim - I LOVE Romans 8:18-19 !!!!
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/20/2009 7:06 AM (GMT -7)   
Hi Jenna29. I have more sun advice. Always wear a hat outdoors and apply sunscreen often. Neutrogena makes great sunblock with SPF 70. I really like the spray cause it's quick and easy to use. I know it's too late, but for later reference u can google "sunblock clothing" too find stores online. I have shirts, pants, hats, and even a long sleeve swimsuit with pants. Lastly, for pain I use Tylenol Arthritis. It is OTC and can be taken 3 x a day. To ease ur mind, try to think of the relaxing seashore. Ask ur husband for plenty of bedroom entertainment and take advantage of the calm that follows. wink   Have a great time. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/20/2009 7:59 AM (GMT -7)   
Jenna,

You're so smart to be thinking about taking care of your health while on vacation. When I went on my honeymoon 12 years ago I threw caution to the wind and got a great tan, drank pitchers of pina coladas all day, stayed up half the night, and had an absolutely heavenly week. Within two days of getting back home I crashed and burned. I had the worst flare I'd ever had up to that point. I was a hard learned lesson.

From then on, trips to the beach include Sunblock Sunblock and more Sunblock, large rimmed hats (which are very sexy, by the way) Rosie's long sleeved white shirts, and shade. I have even taken my own beach umbrella on the plane. Mailboxes Etc. packed it for me and I stuck it in the sand on the beach. Believe me, everyone was jealous of my cute little umbrella. We took the family to Cancun for Christmas one year and my hubby or one of our sons would get up early and reserve a block of lounge chairs that happened to be in the shade so that I could spend the day on the beach with them.

You'll find a way to protect yourself from the sun because you're motivated. Take loads of sunblock with you because it's so expensive at a resort.

If my hubby called me PattyDowner, he'd be sleeping alone that night. :) I hope he'll respect your boundaries. If you go up to your room earlier than everyone else, it's their problem if they don't like it. Please don't succumb to peer pressure. You're better than that.

As far as your doctor, tell your PCP everything you just told us. I'm sure he'll give you something for pain. Just be careful about taking pain meds and drinking.

But most of all, Have Fun! Take sexy nighties and candles and wear your hubby out and he won't complain about anything at all.

Have a great trip. I can't wait to hear all about it.

(((((Hugs)))))

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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