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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/21/2009 7:12 AM (GMT -7)   
There have been some sudden changes during the past couple of weeks. My 33 yr old stepdaughter asked me to help her with her finances so we sat down a couple of times last week and worked through them. She has so much debt that there's hardly enough $ at the end of the month for food for her and her two daughters. And there's no $ for day care. She's a nurse and leaves work at 6:30 am and gets home at 8:30 at night. She had planned for my little 8 & 10 year old granddaughters to stay at home by themselves this summer. The thought of them being alone inside their house all day long makes me sick to my stomach. So I've decided to keep them this summer. They've been neglected so much that they have some behavioral problems and my stomach hurts when I think of what I have committed to.

I used my nervous energy to turn my playroom into a summer camp for them and have it filled with summer activities, bulletin boards, etc. and have enrolled them in tennis camp & vacation bible school, knitting classes, and other things. But it's like driving down the street and seeing a litter of puppies in the middle of the road. You just can't not stop and rescue them.

This may seem like not much to you moms out there who take care of little kids all day, but at 60 I've become accustomed to a lot of rest and quiet. I look back on the days when I was a mom taking care of my three kids and I yearn for the energy I had back then. And my kids were so easy and fun.

I'm doing my best to keep a positive attitude about this and make it fun. These two little girls deserve better than they have and it's time I stepped up and did more than I do. They're here a day and a half as it is so they are used to being here. Wish me luck.

Additionally, my stepson is having severe depression and his psychiatrist asked us to let him stay here for a while. He has a lot of anxiety and he and his dad don't get along. I love the kid and am trying my best to help him. All three of my stepkids were horribly abused by their mom and then she abandoned them....packing up the house and moving out of state without saying goodby when they were teenagers.

I have to do this and I know I can do this but my stomach is a huge tight knot. It's time I took my own advice that I often hand out and do some quiet meditation.

And Rosie, I think I'll have a cup of your hot tea. Thanks for listening to me vent. This helps. yeah yeah yeah yeah yeah yeah yeah yeah yeah
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

Post Edited (PattyLatty) : 5/21/2009 8:15:04 AM (GMT-6)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/21/2009 10:32 AM (GMT -7)   
Hi Pat,
 
You are in a tough situation. You're doing the right thing for those little girls by having them stay with you over the summer.  You never know, but those 2 months could be the change they need to sort their own little heads out.  They need emotional nurishment and you're giving that to them.  You are a wonderful grandmother.  On the hard days, reach out to those around you.  We're here for you any time!
 
Lots of love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/21/2009 11:31 AM (GMT -7)   
Patty, you are a wonderful caring person to be willing to give so much of yourself. I understand you are tired more and used to a quiet life, my grandma is taking care of my son while he is in foster care so he doesn't have to be with strangers so I kind of understand what you are doing. Those girls need love and attention, not to be along for more than 14 hours besides which legally they are too young and your step daughter could lose her children if she left them alone all day. You may very well be saving them from foster care. As for your step son it sounds like he needs some tlc as well but should be doing therapy to deal with his issues a little more often if he needs to live with family to cope. I have anxiety issues myself and suffered every form of abuse possible as a child and in my first marriage so I kind of understand where he is coming from though my mother married me off at 16 instead of running away but her reasoning was she was sick of being responsible for me. I did years of therapy to get to the point I am now. Wish I could offer more than understanding but come and vent anytime, that is why we are all here. I really hope this goes better than you expect and that time with you helps you grandchildren overcome their behavioral problems.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/21/2009 12:18 PM (GMT -7)   
Giny and Red, thank you. I do feel a need to vent and talk about this. Red, my stepson is getting a half-day of outpatient therapy every day. He has opened up to me a lot and is learning to talk to his dad.

When my hubby and I married 11 years ago we had more issues than these with his kids and life was hell for a few years. The kids have all grown and improved, but the big difference now is that I love them. It was a lot harder back then. I believe that the stress of dealing with rebelious, addicted teenagers is probably what caused my lupus to show up and flare. I'm going to start weekly al-anon meetings on Fridays. I must be a supportive stepmom and grandmother but first I need to learn how do get a better handle on my stress.

Every bit of this is worth it because my husband is such a good man and husband. He's truly my soul mate. Problem is, he's not a very good dad. But he's trying.

I've been spending the day getting the playroom ready for "camp". It really is going to be a lot of fun and maybe it will even be good for me. We have a pool and a live in a quiet neighborhood with wonderful neighbors & sweet little kids on the block, and a large shady park a block away. My next door neighbor and I are going to carpool to tennis camp and she's such a wonderful mom that her kids are amazing. They're 4, 7, and 12 and come over to play with me and my dogs nearly every day. They're a good influence on my granddaughters. I just need to get this large, heavy knot out of the middle of my gut.

Thanks, you guys, for listening.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 5/21/2009 2:29 PM (GMT -7)   
Pat,

I'm not sure that I can express the depth of admiration I feel for you as you undertake this tremendous role. While many people may talk about the "right thing to do," it is very easy to pass when life becomes difficult. And everyone on this board understands exactly what you are taking on. Childcare is one of the most difficult (and rewarding) things a person can do. And with medical issues (you) as well as psychological issues (kids), it will mean a major adjustment for you. I am so very impressed. You have obviously considered many different issues and already begun the process of making this a smooth transition for all of you. The vacation bible school, and tennis, and knitting lessons are great ideas. As well as the summer activity room. It will give you a bit of a rest period as well as provide some structure for the kids.

Some things I thought of (as with any advice, use what you can and toss the rest):

It sounds like the kids will be dropped off very early. If possible (I know that early morning is difficult for me), could kids come in and "camp out" for an hour or so before they wake you for breakfast?
Also, maybe some quiet activity time every afternoon while Grandma takes a rest?
And, great opportunity to have the kids help out with meal planning & prep, laundry, etc. Won't be long before they will be out on their own - it's never too early to learn!
And maybe your neighbor would schedule a time a couple of times a week to keep the kids in exchange for some pool time!

Again, I admire you and wish you all the best. God Bless!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/21/2009 2:43 PM (GMT -7)   
Fran,

You've given me some great suggestions. I've been giving this so much thought because I can't tolerate chaos and a "trashed" house. I've made posters with titles such as "Quite Time Activities" Activities to do with Adult" "Earned Activities" etc. I want them to help fill these out. Quite time activities are things they can do in the play room while I rest - reading, puzzles, games, drawing, etc. Earned activities are TV and going to the movies. I think they'll have fun filling in the rest.

I'm going to give my DIL a key and have her drop the kids off in their jammies and they can go to bed and sleep a while before we all get up for breakfast. I'd love to get any other suggestions you all might have.

I wish I understood why I have this knot in my stomach because I know this can be fun. Maybe I'm getting to the age where change in and of itself is scary for me.

Keep the ideas coming!
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/21/2009 3:29 PM (GMT -7)   
When I read the phrase "knot in my stomach", I wondered if you have some emergency routines in mind should something happen. A little emergency guide by the phone? Just simple things, like a phone number they should call if they find you asleep & you won't wake up, as well as the number(s) you should call if something happens to them. Maybe just the number to call in case they need to go to an activity and you don't feel well enough to drive? Just having all that kind of thing in one place can make me feel calmer and more organized. Not the "real" emergency stuff, but the numbers to get to easy contingency plans should they be needed would help me settle my tummy.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/21/2009 4:22 PM (GMT -7)   
Hi Patty, I think you are a great person for doing this, no one says you have to but you want to help these children and that is wonderful and I know they will appreciate it more than you will ever know!

I felt the same way you are when my cousin called me to tell me to come get our grandmother, that she had enough! I thought to myself how in the world am I going to be able to take care of her, work a full time job, my hubby, my kids, etc. And when I say take care of her I mean it, in every sense of the word. I had to help her bathe, I had to cook, fix her drinks, meds, snacks, etc it was like have a toddler again. Don't get me wrong I wouldn't take anything for that time, especially now that she is gone but it was hard. My body however held up quite well until she moved out with my mom and then it shut down! I went into a terrible flare that lasted a couple of months. Then months later she passed away, my hubby was dx with cancer, had dental surgery and my mom got married, there again I held up pretty well during all of this only by the grace of God and them WHAM! Another flare, worst one EVER.

So I guess if I could give you any advise it would be, even though your body seems to be handling things well, be kind to it. Rest, eat right, don't skip meals, drink plenty of fluids and rest, rest, rest!!!! Since the kids are a little older and can do things for themselves maybe you will be able to take periodic rests throughout the day. OH and don't be afraid to say NO when you are feeling up to doing something!!!

You are a wonderful person and you will be in my thoughts and prayers! hugs and love to you!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 5/21/2009 5:35 PM (GMT -7)   
Hi Patty... you are a good person... you will have many stars in your crown..... good luck...

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/21/2009 6:33 PM (GMT -7)   
Wow Patty . . . . *phewwwww!* Tea on the way!!!

Sounds like you have made some great plans to manage the kids. I have a book recommendation if it might help. This guy is amazing. Kevin Leman is the author . . . the name of the book is "Have a New Kid by Friday". His method is so great. There is no arguing or threatening . . . I heard him speak on a Christian radio show. He is brilliant. Without realizing it, my husband and I had been using a lot of his techniques, so I know they work.
When you said "earn TV privileges" . . .that is one of his tools.

With your step son . . . I can only suggest that there be some "house rules" before he moves in, which would include paying his way (even if you don't need the money). Because he needs to have that responsibility. He should also have other responsibilities there. A weekly family meeting might also help. A friendly time of going over the issues. I had a brother-in-law board with me and the friendly meetings really kept things smoothed out.

I finally got my invite to Ravely . . . YEAH!! Thanks for mentioning it! I'm really enjoying the community . . . I found a group there who, like me, changes patterns to make them seam-free. LOL . . . I've made the Saartje Booties and they are SO cute!!

I hope your summer is a blessing!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 5/22/2009 6:51 AM (GMT -7)   
Wow, what an amazing unselfish thing you are doing!! I am just about 50 years old and don't think I would have all that energy to go through to take care of an 8 and 10 year old. My 16 and 18 year old boys (who should be self sufficient) keep me extremely busy with their schedules and many days I'm just exhausted - emotionally and physically. Through my diagnosis I've understood that stress has been a big part of my disease and healing. Please take care of yourself and keep us posted. Sounds like you have great ideas to keep them busy, but kids need constant entertainment and that can be a challenge. Now that summer is coming, maybe you could have them set up their own lemonade stand to help them understand about finances and to raise money for their own activities. Good Luck Patty!

Hugs and Angels,
Lynnette

DX - lupus and carpal tunnel

meds - prednisone, plaquenil, folic acid, various anti-inflammatories

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/22/2009 7:25 AM (GMT -7)   
Wow. I never expected support like this. I thank you all from the bottom of my heart.

Lynnwood. Your suggestion is perfect & I wonder why I didn't think of it earlier. I'll make a poster with emergency numbers. My neighbor Julie is nearly always home. My hubby is just 5 minutes away and I'll ask him to as his assistant if she'd run over if he were unavailable. I have two friends who've offered to pitch in if there's an emergency. And I'm going to talk to their other uncle and see if he'd be available some. When their mom has an 8 day stretch maybe he and his wife could keep them for a couple of days. They both have cell phones and I'll make sure they have a bowl for them right under the poster. By the way, my tummy feels better today.

Stacie, taking care of an elderly sick grandmother is harder than watching children. I had a similar experience a few years ago when I moved my folks into assisted living and then Dad into an apartment & Mother into the nursing home part of the facility. My daughter was a teenager and I was running my business. I was exhausted all the time trying to take care of everyone. Dad's license was taken away so there was so much to do. Then suddenly, within 7 months of each other, Sarah graduated and left for college, Mother died, and then Dad passed away. Strange as it may sound, for a long time I yearned for those exhausting days when I at least had them in my life. You and I both know that when we step up to the plate like that, even though it turns our lives upside down, it's something we never regret. I'm sorry you had so many other crises in your life that caused you to flare.

Thank you Weleetka. :)

Rosie, I'll check out the book. It sounds great. The 8 year old threw a fit the other night when I asked her to put her things up after her bath so I sat down and had a long talk with her. I explained that whining, arguing, and yelling make me crazy and she doesn't want me to be crazy, plus they're not appropriate. Then I promised her that I would not scream, yell, or ground. And I needed for her to promise to be a good little girl. She gave me a big old bear hug and we kissed and made up. She's used to being screamed at so it will take some time. I have never screamed at my kids and they never whined or argued. We just talked about things and I hope and pray I can make that work with my grandkids.

My stepson is doing pretty well. He so badly needs to experience life in a healthy home and it breaks my heart that at 25 he's never had a happy place to live in. He's going to group in the mornings and working in the afternoons. We talk a lot. He's loving being here with my daughter, who's home from college for the summer, and he loves his little nieces. With a lot of help and resources, we'll make this a happy summer.

Yeah for Ravelry! So glad you like it. I'm PattyLatty there to, so send me an invite to be your friend and we can talk there and see each others projects. What's your Ravatar? I've been dying to make the Saartje Booties!

Love you guys.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/22/2009 7:28 AM (GMT -7)   
Lynette,

I started this post early this morning and came back just now to finish and post it so I hadn't seen your sweet post. A lemonade stand is a grand idea! Take care of yourself! Teenagers can wear you out more than anything or anyone in the world!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/22/2009 11:41 AM (GMT -7)   
Patty,
You never know, it may improve things at home, they may bring together your stepson and father, or at least help the stepson. I have a 21 year old son at home that is very hyper on the immature side, which is fine by me, though he's growing up now. Anyway, in the months he's gone, things get tranquil and I rest so much that I think I can never be that active again. But when he's home, somehow, his energy is contagious and keeps me going, to a point.

As a single mom who worked two jobs, I taught my son how to wash dishes with me and clean up, making it a game, and he helped me carry things and do things we needed to do. I think so many kids these days are utterly helpless because they have not been brought up like kids used to be, working on a farm after school, doing chores, etc. It's so important for them. And they also need to learn to care for someone other than themselves. I try to look at it this way when I feel guilty about my illness, that my son has learned to care for someone, me in this case when things are bad. He haslearned to cook, to clean, to help me with bills and to do his own, to do laundry, work on cars with my boyfriend, do outdoor work, but most of all, to care for someone else. When he gets married, some lucky woman will have a good guy who will not be afraid of illness, but step in and know what to do. Sometimes out of the blue he gets me a cup of tea(like Rosie). It just doesn't get better than that.

I'm not a perfect mom, but in some ways, being sick is a part of life, and my son knows about it and can get through it. When he was little and I was really sick, we tried to hide it, but I was so sick, it could not be hidden. It frightened him and saddened him because he didn't know what to do or what would happen. It was better that we talked to him, and he began to help out, spending time with me back then, so he felt he had some control over things. Now, we share our illnesses and care for each other. I'm glad we did that.

I know you will be in for some great times that will make the rest pale. And I really pray this helps your stepson realize there is a world outside his head, full of people who need him to be there, whole and healthy. Best wishes, Patty, I know you'll do fine. And also, I feel for your daughter and her work schedule. It's shameful people have to work so hard just to try to live.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/22/2009 4:05 PM (GMT -7)   
Patty
My sister is watching her grandson he just turn one, she did say she does get tired, but it is worth it to her, and she doesn't have lupus. What a great grandmom you are to those children, it sounds like you are prepare. I hope everything goes well. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/24/2009 8:12 AM (GMT -7)   
Thanks Marj and Debbie.

Our first day of "Summer Camp" was wonderful. The girls love their new playroom and have really bought into the idea of this being a camp. Their attitude was great and when I got exhausted from all we had done and went in my room for a break they happily went to their playroom and worked on scrapbooks. Cross your fingers! And a great big thank you for everyone's support.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/24/2009 10:31 AM (GMT -7)   
idea I want to come and play at your summer camp too!!! yeah

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/24/2009 1:17 PM (GMT -7)   
Come on over this afternoon. I'm exhausted. Thank goodness my hubby's home today so I can take a nap!
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 5/24/2009 6:38 PM (GMT -7)   
Pat,
You have such a kind and giving heart. Your whole family is lucky to have such a generous lady in their lives. I don't have any advice, but I wanted to give you my support. Good for you! You go girl!
Thanks!
Trish
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/24/2009 7:27 PM (GMT -7)   
OK Patty . . . heading over with my knitting and portable recliner!! Finished that little Grrrrr washcloth for my grandbaby!! Its so cute!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/25/2009 6:37 AM (GMT -7)   
I have a great story.

Yesterday we took our granddaughters out to breakfast after church. While we were waiting for our food to arrive I gathered up all the silverware on the table, told the kids to imagine that the forks and knives were also spoons, and proceeded to tell them the spoon theory.

Brittany, the energetic red-headed 8 year old, is as bright as she can be. She showed a real interest in my Spoons and asked a gazillion questions. Later in the day she came up to me and asked me how many spoons I had left. In the evening, she approached my hubby and said, "Mamita really loves me, Pappy. She's playing with us and she doesn't even have any spoons left."

Don't you wish adults had that kind of perception and understanding?
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/25/2009 10:55 AM (GMT -7)   
You know I really wish the spoon theory would fix the problem with my 11 yr old, but she thinks I am lying about being sick or at least says I am and I can't get her to the dr with me. Your grandkids sound nice.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 5/26/2009 6:44 AM (GMT -7)   
Pat,
Just wanted to tell you how happy I am that this is working out so well. Your positive attitude is wonderful! Lucky granddaughters!!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 5/27/2009 1:47 PM (GMT -7)   
Hi Patty Latty, I just read your cry for help and I sooooo know what you are talking about. As I try to sell my house and imagine living with my daughter who has a 2 yr old daughter and my daughter is planning on taking on-line courses this fall, "besides MeMe(that's me!!!) can help! Oh my gosh shocked ! What gets me through is the fact that I believe that loving that beautiful 2 year old, can have tons of beautiful blessings. I am 51 and so very tired at times and wonder how i will do it. I guess I will do it by God's grace and the rewards will come, one day or another. I'm proud of you and believe you did what you knew needed to be done. I love your litter analogy yeah ! You are gift sent to those children and they will always remember their stay with you. Blessings at 60! They are going to learn lots from you even when the flairs come, they will learn. It's all good! Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 

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