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santal016
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/22/2009 5:59 PM (GMT -7)   
Hi All...
 
I have a lot of questions...  Sorry if this seems so winded, but the "usual" lupus symptoms don't match mine...  but...  if i google the symptoms I have been experiencing... it seems that other people are suffering from the same symptoms, and many of them have been dx. with lupus....   
 
I do not have any rash, but I do have the following...
 
Chronic night sweats (over ten years) In winter I sleep with the windows wide open, and a fan blowing directly on me.. and i still sweat..  In summer A/C helps..  I still need the fan...  but withot these...  I'd need to change the sheets and my night clothes at least once during the night...
Flank Pain
Recurrent UTI's (requiring surgery)
Abdominal Pain
Diarrhea vs. Constipation
Transient Skin Pain Patches (no rash...  just feels like a bad burn... typically in a small patch..  not all the time...  and not in the same place)
Mouth Sores
Insomnia
Acute Hearing Loss (100%) Left Ear (10 years) no explanation!
Migraine Attacks and Headaches
Swollen Lymph Nodes Base of my Neck (they occur at least twice a year)
Fluid Retention (at times i can gain 10 to 12 pounds over night)
3 episodes of bells palsey
History of Chronic Anemia
History of Chronic Breast/Ovarian Cysts (Total Hyst. 9 years ago)
Fatigue
Charlie Horses
Painful Relations
Depression
 
2 years ago I had an unexplained positive ANA
 
Now I am suffering from joint pain...  :(
 
I had a cousin who died of Lupus about 15 years ago... 
 
So, I did see my doctor today, and had a lot of bloodwork done...   but as a nurse myself..  no research or doctor can answer a question better than the patient themselves.. so..  I ask you...  your thoughts?? 
 
Thank you in advance..  and God Bless!!!  
 

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/22/2009 6:29 PM (GMT -7)   
Welcome to the forum Santa !!

Sorry I can't answer your question. Lupus is a HUGE topic and diagnosis can be elusive for a long, long time. There are some great links at the end of my signature though . . . lot's of advice in the posts of the "Lupus Resources" topic.

One question/hint: What is the "pattern" of your positive ANA's . . . sometimes that 'can/might' be a clue. Also . . . get thee to a rheumatologist. They are the doctor's trained in this auto-immune maze.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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