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Ree.Ree
New Member


Date Joined May 2009
Total Posts : 6
   Posted 5/27/2009 3:19 PM (GMT -7)   
I am the only one in my area that has any form of lupus. I would love to talk to yall that have it because no one around here can understand me.
 
i would rather talk about it in chat so reply to this post and i will go to chat!
 
thanks!
 
~Shane Nathaniel Grey and Naomi Ella Hernandez = Love~


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/27/2009 3:52 PM (GMT -7)   
ReeRee, I don't chat so well as my hands are very painful today, but I'm curious as to where you live. You never know what kind of support may be out there. I live in a very rural area of North GA and there are several people I know with Lupus and RA as well. It takes me forever to type just this little bit. Sorry to hear you're having a bad time and I'm sending you happy thoughts and prayers.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Ree.Ree
New Member


Date Joined May 2009
Total Posts : 6
   Posted 5/27/2009 4:21 PM (GMT -7)   
i live in WA state.
puccini914 said...
ReeRee, I don't chat so well as my hands are very painful today, but I'm curious as to where you live. You never know what kind of support may be out there. I live in a very rural area of North GA and there are several people I know with Lupus and RA as well. It takes me forever to type just this little bit. Sorry to hear you're having a bad time and I'm sending you happy thoughts and prayers.


~Shane Nathaniel Grey and Naomi Ella Hernandez = Love~


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/27/2009 6:28 PM (GMT -7)   
Here's a link to the Lupus Foundation Pacific NW chapter. Maybe they have some local info for you. Good Luck and we're always here for you.

http://www.lupuspnw.org/


Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/28/2009 5:11 AM (GMT -7)   
Hey ReeRee . . . Jennifer gave you a good link. Under "Services" they talk about monthly support groups. You can call:

In Seattle call 206-546-6785
Outside Seattle call toll free 1-877-774-2992

and leave a message and they'll get back to you. It looks like they have packets to mail out and they would know where your nearest support group meets.

The local support group (even though it isn't too near my home) was really helpful to me because I asked the other members what Rheumatologist they used and it helped me find a doctor who finally was able to treat my symptoms. I remain in diagnosis limbo . . . but lots of us have no definitive dx and our doctors treat our symptoms.

If you haven't seen a Rheumatologist yet . . . that is the right doctor to see for Lupus symptoms. Lupus is a really tricky disease to diagnose and the rheumy has more training to sort it all out and treat our symptoms.

I hope this helps. I don't see you in the chat room right now . . . sorry.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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