Yet another wacky symptom

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puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/27/2009 3:59 PM (GMT -7)   
Hi Ya'll, I've developed yet another symptom to my yet unidetified AI condition and wanted to run it by everyone here.  My hands have been hot, swollen and very painful for two years, now all of a sudden I'm getting these horrible sharp cramps in my hands and they curl up in a ball and I have to force them flat which is incredibly painful to do.  It only lasts about 30-45 seconds and goes away once I straighten them out again.  It will happen a couple of times in one day and then go away for a few days and then it comes back.  The weird thing is that on those days I have very questionable hand control.  I drop things that I think I have a firm grip on.  Lost a whole plate of diiner, a couple glasses and almost dropped my two year old.  My doc says it may be as simple as a magnesium deffiency or it may be something else entirely.  We're trying a supplement to see if increasing MG helps.  Anyone else have this?

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/27/2009 6:12 PM (GMT -7)   

Not weird. Several of us have it. When you straiten them out and let go they crinkel back up again right? When you try to stir somthing with a fork or spoon they tend to cramp up more? Do your feet and toes do it too? I personelly think it has something to do with either the steroids or possibly and vitamin dificiency. But that's just a guess. I remember when I was walmart I was in tears because I grabed a blouse that was on a hanger. My hand twisted up so bad I couldn't stand it.

If you find some answers let us know

hugs


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/28/2009 5:02 AM (GMT -7)   
Hi Jennifer,

Is the skin on your hands normal? I think that Scleroderma can cause curled hands, but I thought it was from the skin tightening . . . and yours doesn't really sound like that. But lots of lupans have some positive markers for Scleroderma too.

Forgive me . . . you've probably already posted about this but I have a hard time keeping everyone's story straight. . . have you seen a rheumatologist? If not, that's where you really need to be tracking down these symptoms.

Keep us posted.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/28/2009 5:36 AM (GMT -7)   
Hi Rosie, No skin thickening or tightening. This is more like a nerve/muscle thing. It's like my left hand just sometimes gives up and stops working. Doctor said it might even be a pinched nerve, a magnesium defiency or just part of the whole inflammatory disease. I had a Rheumy, he was awful, but it was also very early in my illness and all of my symptoms had not yet manifested. I now have 6 of 11 criteria and Rhuemy referal is in the works. Things got so bad financially that we actually qualified for medicaid for now anyway. So I'm using this time to find a Rhuemy who will hopefully aid in my third SSI appeal. I found a Rhuemy by cross-referencing my insuance specialist list with the LFA GA website list. Let's hope he's a good one.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/28/2009 5:47 AM (GMT -7)   
(((Jennifer))) Sometimes I think I'm the queen of wacky symptoms. I added my signature quote when I started getting ingrown fingernails- at the base of the nail. I have one now along with the skin splitting at the tops of my thumbnails. Go figure. Regarding ur painful hand cramps, another possibility is tendon retraction. I kind of doubt it's this cause it takes soooo long for it to occur. Anyway, google tendon retraction. As for the drops, it was part of my initial lupus symptoms. I still drop lots of stuff with some days worse than others. I'm so sorry ur having to go thru this. It can be hard for me, but my baby is 24 y/o. I'm so sorry u have all this wackiness and two little ones to care for. Lots of hugs Sweetie. Love, Donna    

Systemic Lupus ('05), depression, fibro, cns issues, sjogrens, diabetes, gerd, hypertension, IBS, stage 1 kidney disease, Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, actonel, tylenol arthritis, neurontin, flexeril, nasonex, phenegren, swish & spit, vitamins, fish oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/28/2009 8:37 AM (GMT -7)   
Thanks Donna, since it's more annoying then painful the dropping things is the least of my worries, well except for picking up the baby, he's not even two yet and he's 30 lbs and wearing a 3-4t. He's huge and built like a little tank, so I'm pretty careful that I've got a good hold on him before I lift him. The hand cramp pain is bad but it doesn't last long, since it corresponds to the dropping stuff it's kinda like getting a heads up to be careful. LOL Am I desperately trying to look on the bright side? Kind of like saying I'm saving a fortune on shampoo since I don't have much hair left. Thanks again for the feedback. Take CAre and God Bless.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/29/2009 5:45 AM (GMT -7)   
Jennifer, every day I desperately try to look on the bright side. I like to watch funny movies- even the really awful ones- to help me laugh. Trust me, desperation isn't a bad thing. When ur no longer desperate and curled in the fetal position on ur bed, that's a bad thing. Love, Donna
Systemic Lupus ('05), depression, fibro, cns issues, sjogrens, diabetes, gerd, hypertension, IBS, stage 1 kidney disease, Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, actonel, tylenol arthritis, neurontin, flexeril, nasonex, phenegren, swish & spit, vitamins, fish oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/29/2009 7:01 AM (GMT -7)   
Jennifer,

I love your attitude. When everything seems to be going wrong, what's left but a good laugh.

I don't have cramping in my hands but they are certainly very very weak. I assume it's arthritis, whether from my osteoarthritis, or inflamation in my joints from lupus, or a combination of the two. I can't carry my coffeepot any more. I lay a kitchen towel on my left forearm, hold the pot in my right hand and set it on my left forearm. At least people aren't surprised to see a 60 year old with weak hands, but it must be even harder for you young folks. Especially those of you with babies!

I need to strengthen my hands because my grandbaby is due in 4 1/2 months and I'm going to be picking up that baby no matter what!

Good luck finding a new rheumy! It's so important to have one that you like, and most of all, I hope figure out what's causing the problems with your hands.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/29/2009 7:47 AM (GMT -7)   
Thanks Pat. My hands have been pretty bad these days even taking the pred daily. I have to keep reminding myself that I've had a lot more good days while taking the pred daily then without it. It's just so frustrating when I feel this bad and look in the mirror at my weight gain and moon face and have to tell myself that it really is worth it. I wrote into to TLC's What Not to Wear show and nominated myself. What a great awareness raiser if I could get on the show, huh? I would love for someone to tell me how to camoflage my pot belly, moon face and thinning hair. I guess we'll just wait and see what happens, huh? Happy faces to everyone, off to lay down for 5 min until the baby gets into something else. Take care and God Bless.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 5/30/2009 10:45 AM (GMT -7)   
Hi!
My neuro told me I have symptoms of carpel tunnel, (it was a coincidental diagnosis from the nerve conduction studies I had during my lupus workup), the dropsies, the cramps, the numbness and tingling, etc, the stop you in your tracks intermittant pain, not from repetitive strain injury, but from nerve inflammation that when the nerve in my wrist is swollen it's bigger, and then it becomes "impinged". And actually, wearing a wrist brace at night does help keep my hands from tingling and falling asleep as much,
hugs,
sue
p.s. I always use my forearms whenever I am lifting and carrying my 7 month old granddaughter. yeah

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

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