Hi Alli, and welcome! I'm taking 50,000 units of Vit D once a week for 8 weeks. It was Rx'd by my rheumy. My level was 9 - not much higher than yours. I'm supposed to take it so that I can begin taking a biophosphate for osteoporosis - as apparently the body needs adequate Vit D to absorb the calcium.
This isn't my first go round w/ Vit D. I had to stop the 50K dose after the third week about 2 yrs ago because of increased muscle pain and spasm. Last year I tried 1000 per day and did much better with that and it did bring up my level slowly but surely, however there was a controversy about one of the re-tests after 2 mos., indicating I had too much Vit D and I was told to stop supplementing. I'm beginning to think it was just a snafu with the lab (different one for the retest) since my level is right back down there again.
At any rate, I'm back to trying the 50K dose weekly - 1 down and 7 to go. If the same side effects occur - I'll switch to 1000/day. As a rule my rheumy has done a re-ck after 2 mos of supplementing. I stay out of the sun as well.
Good luck with your rheumy appt!
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn