Why am I SO HOT???

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Regular Member

Date Joined Mar 2009
Total Posts : 31
   Posted 6/3/2009 11:27 AM (GMT -6)   
Hello everyone
I am kinda new to Lupus.  I developed Lupus after being on Remicade for Psoriatic Arthritis.  I am already used to symptoms like pain and fatigue but lately I am constantly HOT.  Whenever I leave my house and go anywhere I start sweating, get fatigued, my face turns red.  It is really embarrassing.  I keep my house around 72 degrees.   I went to eat at my parents house and my Dad had to get a fan out to put beside me.
It is not just an uncomfortable feeling.  I can not toloerate it.   It happened at Target this past weekend.  I am not having fever anymore.
Is this a Lupus side effect or a Prednisone side effect.   Can someone tell me if I am crazy or what.......LOL
Thanks for any advice.

Regular Member

Date Joined Nov 2008
Total Posts : 52
   Posted 6/3/2009 12:03 PM (GMT -6)   
Hi I am also new to lupus. I to get hot and my face gets really hot. I could not even eat thanksgiving dinner this year. When everyone else was eating I was laying down with a ice pack on my face because it was beet red and hot. It is very embarrassing when out in public. I think it is the lupus that causes it.


Regular Member

Date Joined Feb 2009
Total Posts : 58
   Posted 6/3/2009 2:54 PM (GMT -6)   
Another hot bod here - although my body temperature is normal, my skin is literally on fire. I permanently feel like I'm sun burned. Which I'm not because I never go outside. I was joking the other day that I need the opposite to a heated blanket for bed, does such a thing exist? I feel a web search coming on!

Regular Member

Date Joined Mar 2009
Total Posts : 31
   Posted 6/3/2009 3:55 PM (GMT -6)   
weird thing is my nomal temp is 97 and am hot as heck....ugh.

Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 6/3/2009 7:46 PM (GMT -6)   
I keep my air at 70 degrees and I still get red and hot. My hands and feet will feel like they are on fire. I've wrapped my feet in frozen towels and that helps a little. I also sleep with an air vent pointed right at my face. Poor DH would like to walk around in shorts in the summer, but I keep the house to cold for that. I am also limited to how much time I can spend outside, it just too hot. No more BBQ's, I've missed 3 this season already. I also get migraines if I am hot for too long and those things will last for days. I don't know why this is, I guess it could be spikes in the inflammation in our bodies, our immune system is working so hard at fighting nothing that it just starts cooking us. Who knows.


PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.



Forum Moderator

Date Joined Jun 2006
Total Posts : 1531
   Posted 6/4/2009 10:58 AM (GMT -6)   
I'd like to say this is cool, but well, u know... I get this during sping & summer. I too have my Target-shopping embarrassment. I sweat so much my hair is dripping wet from my neck to my ears. I keep my hair short in a futile effort to hide it. I also have a temp between 96-97. Maybe the low temp gives us a lower heat tolerance? Anyway, I'm keeping good company here. Love, Butterflake 
Systemic Lupus ('05), depression, fibro, cns issues, sjogrens, diabetes, gerd, hypertension, IBS, stage 1 kidney disease, Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, xanax, ambien, actonel, tylenol arthritis, neurontin, flexeril, nasonex, phenegren, swish & spit, vitamins, fish oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

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