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Looking for Answers 2009
Date Joined Jun 2009
Total Posts : 2
Posted 6/3/2009 6:04 PM (GMT -7)
Ok, I have never posted anything online before.
I am needing help finding out what is wrong with me!
I had a baby 7 week ago. Almost 2 weeks after childbirth (c-section), I developed a temp (101.8) and had to go to ER- diagnosis bronchitis and possible mastitis (?) Given 3 doses of Clindamycin, developed allergic reaction (redness and swelling of face)- given one dose of Levaquin, had severe burning and numbness in my hands several hours later- I discontinued immediately. Also stopped breatfeeding. Prescribed Keflex, had another reaction, no longer on any antibiotics. Symptoms continued of numbness in my hands/fingers, along with nausea/vomiting, severe joint pain in neck, knees, hands, fingers, elbows, shoulders to the point that I become bedridden for a few days. My PCP prescribed Medrol dose pack, and symptoms went away. They returned a few days later- My PCP then took my Sed Rate, and came back at 50 even after steroids, elevated WBC. I then took Prednisone Taper, last dose was Monday, and symptoms disappeared, except for numbness in fingers. Then last night the symptoms returned -The pain in the middle of the night as almost unbearable. The pain is now also in my ankles and even my jaw- worse on my right side. Severe knee pain, ankles, hands, fingers.My husband had to lift me to the bathroom b/c I couldn't walk. I tried to keep moving my extremeties last night- stretching my muscles, couldn't sleep b/c I am so worried. I was prescribed Voltaren by PCP, which doesn't seem to be helping much. Today the pain has been better, although tonight I seem to be getting stiff again. He also prescribed Davron today to take at bedtime. I am scheduled to see a Rheumatologist next week. Also saw a Neurologist, who thought it might be Carpel Tunnel (doesn't explain any of the joint pain).
My mom has Lupus (reportedly) and when I was 15, I had an unexplained incident where I was bending in front of fridge, lost all control of my legs and couldn't get up- saw a Rheumatologist- think it was "arthritis"- for years I took Celebrex, knees would swell and ache, esp when I stood on my feet for hours at a job. Symptoms went away in my 20's.
I am wondering what on earth is wrong with me- does any one have any ideas? I wonder if it could be a reaction to the Levaquin dose- I have heard joint pain and Peripheral Neuropathy can be rare side effects- or possibly arthritis, Lupus, or something else.
Thanks for any ideas!
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Date Joined Dec 2008
Total Posts : 2386
Posted 6/3/2009 9:28 PM (GMT -7)
THink you should see a neurologist and a oncologist in my opinion. Neurologist--can confirm with a nerve conduction test if you have carpal tunnel. Oncologist--to get down into your immune system and find whats wrong
Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
Epi-Pen, Albuterol Nebulizer, Benedryl
Taking Lorazepam (Ativan) on Radiation Days
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Date Joined Mar 2006
Total Posts : 2572
Posted 6/4/2009 6:09 AM (GMT -7)
Looking, it does sound like something is going on with your immune system, but the vomiting makes me wonder if something else could be going on as well. Because your symptoms have been so varied, sudden, and severe, I'd make sure I got a complete medical workup. Have your rheumy or pcp put a name to this? Smurfy is right...you may need to see a neurologist and other specialists to find out what's wrong. It sounds just awful, and to have this happen while taking care of a precious newborn must be a nightmare.
If I were you, I wouldn't wait around for answers, but I'd either insist on more testing or get another opinion. Be sure that you have a good line of communication with your doctors. Take a list of questions with you when you see them and don't leave their office till they answer them. If they won't take the time to help you understand what's going on, I'd get another doctor.
You poor thing. I hope it's not lupus. I hope it's the result of an infection that will eventually subside. Did they run an ANA test?
Check out the resources page at the top of the lupus forum. There's a lot of terrific information there. And I'm sure others here will chime in and have better ideas than I do.
Hang in there, and hang around here. We'll do our best to help you through this.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex
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Date Joined Oct 2004
Total Posts : 2244
Posted 6/4/2009 10:24 AM (GMT -7)
It definitely sounds like something is going on, it's good that you have an appt with a rheumy next week. Be sure to make a list of ALL of your symptoms and when they started, even the ones that don't seem important. Make a note or take a copy of any labs, x-rays, etc. Your first appt with the rheumy should be long, not a quick in and out. They should examine all of your joints, hair, skin and take down your symptoms and family history. I would hope with your mom having lupus they would also run some lab test to try to get to the bottom of this.
Unfortunately, lupus is hard to dx, there is not one test used to point to lupus only multiple tests ruling other things out. It's kind of like a big puzzle the doctor has to piece together over time. I do hope they can give you some meds to help with the joint pain, etc. Please keep us posted on how you are feeling and how your appt goes.
Always feel free to ask more specific questions! Hang in there and take care (((hugs)))
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~
DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)
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