Hi Nola, and welcome! Your story does sound very familiar. I'm glad you've been referred to a rheumatologist so quickly. I've been seeing my second one for going on two years. I have the positive ANA - first one right where yours is at, which then continued to elevate over the next year and half, while my other labs have been pretty normal and negative for other AI factors. My rheumy runs them every six months or so - she is fairly certain eventually what is "hovering" will land in a clinically diagnosable way. In the meantime my dx is UCTD, and I've been on plaquenil for 6 mos. It does seem to be helping lower the intensity of my fatigue and pain, while decreasing (knocking wood,here) the depth of the flares. In other words I don't feel as if I have my life back, but have more good days.
My patterns have been speckled and homogenous and nucleolar, on different tests - not sure how helpful they are for diagnosing. I also have Vit D deficiency and osteoporosis. My CRP goes up with an acute flare, as do my liver enzymes. I'm another one who can't help you identifiy your menstrual cycle as a trigger, but it seems I've seen that mentioned by others. I get burning scratchy eyes, but not the tears. My husband does say when his eyes get really dry and tired they water and burn, but I'd mention it to your doctor as Sjogrens' is another possibility.
I hope you like Colorado - my sister lives in Fort Collins - she just loves it there. Good luck with your rheumy appt.! I have found so much support and help here from folks on this forum after getting so frustrated with the "wait and see" approach. It's hard when you are barely functioning and there aren't concrete answers.
Blessings to you and your daughter!
21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel