Itching...is it a symptom?

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rach_dawn
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/18/2009 11:17 AM (GMT -7)   
I'm new to this forum, 26 years old, and recently have discovered that I have what, if left untreated, could turn into full blown lupus.  The doctor says we have caught it very early and now that I'm on meds, the insane pain I was experiencing in the past few months is almost non-existent.
 
Since this, I have started itching.  Usually about 1 time per day, all over my legs and arms.  The itching fits last from 10 minutes - 45 minutes and I scratch and scratch constantly.  Then, it just seems to stop.
 
Does anyone else experience this?  Do you think this could be a med side effect?  A condition side effect?  It is driving me crazy.  I feel like I spend half my morning with my pants down in the bathroom, scratching my legs! 

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/18/2009 11:42 AM (GMT -7)   
Hi Rach-dawn,welcome to the group. I hope you like it here and come hang out when you need a friend. I'm glad you got over the pain. That's a biggy. As for the itchies. Yes a lot of us get the itchies around here. Some is from the disease but in my case it's from my pain meds. Codeine is real good at making you itch.
What are you taking for pain or any other meds for that matter. If you can post them it might help us to give you an idea of what might cause the itchies. I use nutregina oatmeal bar (it looks like soap but isn't) I'm sure others will come along with ideas to help you out with your itchies. Or your dr my put you on a antihystemine.
anyway welcome to the group! look forward to getting to know you
carol
 CAROL
 scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


rach_dawn
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/18/2009 1:48 PM (GMT -7)   

Thanks Carol, it's good to know itching is common.  I didn't see any itching threads at all.  It did occur to me that I should put my meds in there, however, I can't seem to recall the name and I left them at home today.  I'll check back with them though.

I thought maybe, because my doctor told me to avoid direct sunlight especially without sunscreen that maybe somehow the sun was causing me to itch? 

It frustrates me when things come up like this that I'd like to ask my specialist, but I don't see him until next February now. 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/18/2009 2:15 PM (GMT -7)   
I know some times it seems like forever to get into the drs. Just keep a notebook and write down everything you think of . Even if you have ahang nail. Take pics and bring them with you. Rashes and swollen areas and bruises always seem to disappear the day efore your appt.
Oh also I told you the wrong thing to use on your skin. It's aveeno with outmeal and they sell it for about 4 bucks at walmart in a wrapper that looks like soap. it also helps me with rashes.
I don't use it on my whole body but for my face and stuff. it's worth every penny though.
hugs
carol
 CAROL
 scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 6/18/2009 3:56 PM (GMT -7)   
Hi Rach,

I am chronically itchy . . . flourescent lights & sunlight make it worse - i feel like i have a case of the crawlies pretty much all the time. Oral antihistamines work pretty well for me, but you will want to call your doctor and make sure this is OK . . . you never know what type of drug interactions you can run into and he may have a better idea on how to control the itchies. When it comes to lotions, Neutrogena & Eucerin seem to work best for me, but everyone is different. I have also found that, the higher the SPF, the better the sunblock, the less I itch. Wear it all the time, even indoors - especially if you are exposed to flourescents.

But in any case, call your doctor and see what he says . . . I believe that chronic "crawly" feeling itchies can be an indicator of liver and kidney issues, so you do not want to write itchiness off as just a nuisance.

Good luck!

Anne
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SCLE, Sjogren's, Reynaud's, Peripheral Neuropathy


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/18/2009 10:02 PM (GMT -7)   
I was just diagnosed with low potassium & I'd been itching like crazy. I'd wake up scratching all through the night. since taking an rx potassium, I no longer itch. There are many reasons you could be itching, whic is why aleinwife is right - tell your doctor.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


rach_dawn
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/19/2009 7:01 AM (GMT -7)   
YES! Sunlight and certain lights seem to trigger itchiness. But it's mostly in the mornings, from when I leave the house until about 30 minutes after I get to work.

The meds I'm on are:

apo-hydroxyquinne 200 mg twice per day.

Aveeno with oatmeal bar...I will pick one up and try it, thanks okie!

I have such a beef with sunscreen, I know it helps and I'm supposed to wear it all the time but it makes my face break out! ARG!!! Oh well, I guess it's a trade off.

Thanks everyone. I will start keeping a journal, I haven't been doing that.

rach_dawn
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/19/2009 7:06 AM (GMT -7)   
What exactly is it with sunlight that is bad for you with these conditions? Is it to do with the disorder, or the medications?

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/19/2009 8:56 AM (GMT -7)   
I know when I first started Plaquenil I itched like crazy so I know meds can do this to you. I don't have that problem anymore but it was one of those "in the beginning" side effects.

The sun sensitivity has really everthing to do with the UV rays (I think UVB being the worse). I have an antibody "anti-Ro (SSA)" which is the culprit for me. This antibody is found in a lot of lupus patients and it makes us very sensitive to the sun. I get horrible rashes if I don't wear strong full spectrum sunblock. Even then I can only be in the sun for a couple minutes max. The heat makes us very sick too so the combination of sun/heat is terrible for us lupies. Its an adjustment... I used to LOVE the sun!
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


New York
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/19/2009 5:18 PM (GMT -7)   
I thought that the itching had to do with Morphine. I am coming off the Prednisone slowly but I feel like a real drug addict with the itches all over. I never knew that the Vicodin could cause itching.  I too have experienced the itches on my arms and legs.  I am so white that when I scratch sometimes it turns into bruises and it takes a while for me to recuperate from it.  My skin is very sensitive.  I also developed osteosporosis from Prednisone.  I was just in the hospital because of a broken rib.  So for anyone who is taking Prednisone make sure to take meds for your joints.  I unfortunately cannot take anything orally, so now they are going to try Reclast in IV form.  I will let everyone know how this works.  In the meantime I will keep all my family in prayer. wink

alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 6/19/2009 6:21 PM (GMT -7)   
Hi Rach,

It is the UV in sunlight and flourescents that can trigger flares with lupus which is why sunblock is so important . . . I recently found a sunscreen put out by neutrogena - it's pricey (i believe about $10-12 per tube) that is 100+ SPF that didn't make the skin on my face go crazy (was just in Hong Kong and China for 2 1/2 weeks, below the tropic of cancer - wore it all day, every day in the nasty heat and humidity and had no problems with breakouts and it kept me fishbelly white with no skin flares!). Don't want to give out free adverts for any company, but I have super sensitive skin and this really works for me. Also on the subject of sun, etc., if you are plaquenil or any other anti-malarial, it is important to stay out of the sun because it increases your sun sensitivity.

Good luck!

Anne
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SCLE, Sjogren's, Reynaud's, Peripheral Neuropathy


johnny1959
New Member


Date Joined Nov 2008
Total Posts : 17
   Posted 6/21/2009 8:49 PM (GMT -7)   
Hi Anne

I know what your talking about with the crawly feeling i have been feeling that from my head to my toes for the last few months with pins and needles. now i am on NEURONTIN 300 mg twice a day but now its not helping anymore so i just raised it up to 300 mg 3 times a day two days ago but still the same, i am thinking it could be CNS Lupus but i am hoping to God not!!!

anyway i hope and pray all of you feel better
God hold you
Johnny

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/21/2009 9:37 PM (GMT -7)   
I have the itchies myself and sometimes feel like something is crawling on me, half the time it is the hair falling out of my head and the other half nothing is there. Since I was like this before the meds I figure it is a symptom for me.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


rach_dawn
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/22/2009 3:26 PM (GMT -7)   
Wow, thanks for the great advice everyone! It's good to know about the anti-malarials and UV stuff, now I know exactly what I am avoiding and why.

Anne, I will check out that sunblock, sounds awesome!

Wow, I wish I had found this forum months ago.

hez
New Member


Date Joined Jun 2008
Total Posts : 17
   Posted 6/24/2009 8:21 PM (GMT -7)   

I also found everyone's experiences and comments helpful... I found out the hard way that I need to stay out of the sun... I over extended my time outside playing with the kids by the pool and ended up with a rash on my arms and legs and it is itching terrible... just when I think it goes away it pops back up again... Summer will be very hard because I love being outside in the sun and getting a nice tan...however I will have to adjust like many to a new lifestyle... Does anyone else swell up when you are outside in the heat?  My hands and feet do... Or get headaches from the sun?  Curious?  Thank you!

 

Heather

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