Hi Honbunnie,I was wondering what you were taking the remicade for if you don't mind my asking? I only ask because my friend is taking it right now. Will the lupus go away being off the remicade?
As for your question, it seems that 20 mg is a normal to be taken when you start getting like a puffer fish. I have been on it in the hospital in shots and looked in the mirror scared the crap out of myself.
Yes when you get down to about 10mg. you start very slowly loosing the puffyness in your face and hands. It can take a while and some of it might have to be exercised off. but the round (moon) face will go away. Unfortunately it seems that people crave carbs a lot when on the stuff and it sticks to the hips . You can do it. eat a few salads walk a few miles maybe for the last 5 lbs. The rest should just gradually come off. Predisone is one of those love/hate relationships we have a tendency to have.
Hang in there you will lose it
I'm sorry that you got drug induced lupus from the Remicade. I'm the friend Carol is referring to that's currently taking the Remicade. I've been on Humira for the past year for RA. I've also got lupus/RA/Fibro/Blood cancer. I'm worried about the Remicade affecting me but my RA is really bad. I've been on prednisone for the past 8 years on an average of about 25mg to 30mg a day. I've recently put on 30 pounds and can't seem to loose a drop of weight. Granted I'm not trying really hard to loose weight. I know as my pred levels lessen my water retention goes away and like Carol said the moon face goes away eventually. I'm sorry to say that you will have to put some effort into loosing the weight you've gained. However, if you work at it you'll soon be back to your normal self. I hope thiss helps some.