Hey everyone. Haven’t been here in a few days (weeks maybe?) Just wanted to give an update to what’s going on with me.
Had my regular rheumy appt last Wednesday. Nothing really new… we both discovered at that time that I have Raynauds. I’m sure I’ve had it but I never really pay attention. When she came in the room, she immediately saw my toes and they were very blue and they were very cold and hurt pretty bad. I was wearing flip flops but that’s because it was almost 100 degrees outside. Did basics, checked for joint pain, etc etc then went and had blood test and urinalysis.
Last Friday, I started having really bad thoracic pains and eventually they made it up to my neck (I’m sure because of the tension). My neck was feeling stiff and sore but my back was feeling like it was burning and I couldn’t stand to have anything touching it (I thought my bra was going to kill me!) This lasted all weekend and into Monday so went to see GP on Monday. She said she thinks I have fibro on top of my lupus and sjogren’s. Says skin sensitivity and muscle pain is classic signs. She told me to mention it to my rheumy on my next appt (3 months) and she rx’d Flexeril to take in the meantime.
I got my urinalysis and blood results on Tuesday and everything looked pretty good. It was just a CBC and liver function tests. My Alkaline Phos was a tad low which is not much of concern but my urinalysis shows bilirubin in my urine. I have no idea why and my doc just said that she isn’t sure but to continue as I’ve been doing with my meds, treatment, etc. I look up bilirubin in urine and it looks like it can point to some serious stuff so now I’m a little freaked. I’ve tried calling her office and the nurse doesn’t call back (typical!) I’m scheduled to take my MTX tonight, I would hate to add fuel to the fire.
Post Edited (dbab) : 6/26/2009 10:41:03 AM (GMT-6)