New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 6/30/2009 11:00 AM (GMT -7)   
Have any of you been diagnosed with microstomia (or small mouth)?  It is associated with connective tissue disease, particularly scleroderma, but I suppose it can occur with other diseases as well.  I have a lot of problems with a small mouth.  hate going to the dentist and having work done.  They always comment on how small my mouth is.  I recall one time a dental hygenist screamed at me because I could not open my mouth wide enough for her to get the films in for x-rays! 
 
I believe this problem has gotten worse over the last couple of years.  At my latest dental check-up, it was noted and I was told I had to be especially careful with oral hygiene because it is difficult to get to my back teeth.    I have not been formally diagnosed with microstomia, but I've noticed that my my mouth is startingt to show features of it on the outside.  My mother did have it as a result of her MCTD.  I only have a dx of RA and I'm only 41; not too young for it but definitely on the young side (at least that's what I tell myself :)).
 
Is this something I should ask my dentist about?  Do most general dentists know about microstomia diagnosis and treatment?  Should I consult a specialist?
 
Thanks for your thoughts,
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 6/30/2009 11:18 AM (GMT -7)   

I don't have the answers to any of your questions, ElCamino - but I did have a dentist tell me I had  a very small mouth - which made dental work harder on both of us.  However I never knew there was a term for it, nor did he mention any associative ailments, so I find your post interesting - especially since many years later I have some connective tissue disease. 

For me the worst thing about the dentist is the discomfort of having your mouth open so long and the stress that puts on my neck.  I usually take a rolled up handtowel to add support to my neck.  But I've always attributed that to my fibro.  Even a cleaning can sometimes put me into a flare afterward.  It will be interesting to see what others have to say.

lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 6/30/2009 12:22 PM (GMT -7)   
Thanks for sharing Lucy.  I agree with you--the most painful thing about going to dentist is keeping mouth open.

Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/30/2009 1:11 PM (GMT -7)   
Sorry, I've read almost every post since early 2005 and haven't seen that mentioned before on here. If you think it's related to MCTD would that mean you'd want to talk to your rheumy about it?

Somehow I doubt a regular dentist is going to even have a clue what you are talking about...maybe the rheumy can recommend one or is there a web site for the illness/syndrome that might talk about how to find a dr for it?

Hope that helps a little,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 1:58 PM (GMT -7)
There are a total of 2,733,112 posts in 301,083 threads.
View Active Threads


Who's Online
This forum has 151235 registered members. Please welcome our newest member, johndoss.
406 Guest(s), 16 Registered Member(s) are currently online.  Details
JM@PCaI, martha, Gemlin, Bucko, ToddGR, waterbee, Hungrydude, ArtAngel, smlafleur, rocckyd, RanMan, Mexlyme, Awake_, gilly2, Tall Allen, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer