Barbs in the hospital

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auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 7/1/2009 5:51 PM (GMT -7)   
I just spoke with Barb a little earlier and she had been having chest pains yesterday. The pains became more intense last night. Today she had a neighbor take her to the er. The er drs. ran a ekg and decided she needed to stay for more test and to observe her over night. This is all i really know at this point, i do have her room phone number so if any of you would like to call her and please keep her in your thoughts and prayers 301 319 8448. I'll update with more info as i get it or call her and i'm sure she'd love to hear from you all . I hope everyone having a low pain day, take care .
   Kay

alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 7/1/2009 6:26 PM (GMT -7)   
((((((((((((barb)))))))))))) Koenraad and I are keeping you always in our thoughts and prayers!
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy


superloopie
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 7/1/2009 11:40 PM (GMT -7)   
In prayers.... THANKS FOR LETTING US KNOW.

CassandraLee
Veteran Member


Date Joined Feb 2003
Total Posts : 844
   Posted 7/2/2009 1:04 AM (GMT -7)   

Barb: My thoughts and prayers are with you.  I hope you'll be feeling a little better and will be released soon.

Cass


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/2/2009 8:16 AM (GMT -7)   
Barb, My thoughts and prayers are with you!
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


python
Regular Member


Date Joined Apr 2003
Total Posts : 104
   Posted 7/2/2009 9:31 AM (GMT -7)   
Barb, you are in my thoughts and prayers as always. I hope you feel better!
Donna
SLE, Lupoid arthritis, Mixed Connective Tissue Disease, Scleraderma, Polymyocitis, Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/2/2009 10:48 AM (GMT -7)   

Thanks for the info auntkay. She had called me yesterday but I missed the call and she said she couldn't use her cell phone on the floor. Anyway I just got off the phone with her. She is in quite a lot of pain and they are putting her on an iv drip of either morphine or demerol. My brain is not doing well today. Anyway she has the problem that she has dealt with for years with getting fluid and inflamation around her heart. I have problems with scientific names if it gets passed a hang nail but you get the gest of what I'm talking about. She was told if this doesn't clear up they will have to cut a window and drain it. which is heart surgery. We lost one of our own last year to this so we need to keep possitive thoughts and prayers coming her way.

For those who are celebrating I wish you a day with no pain.

 

 


 CAROL
 systemic scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 7/2/2009 12:52 PM (GMT -7)   
Barb has a fairly extreme case of pericarditis (inflammation of the fibrous sac surrounding the heart). The echo cardiogram showed fluid building up inside the heart sac which is causing her a great deal of pain. She's been waiting on pain meds since about 6 am (it's now almost 4 pm)...military hospitals are a b-i-t-c-h.

The plan is pain meds, prednisone, and laysics (sp? to dry up the fluid).

If that doesn't help, they will try draining the fluid. During this procedure, called pericardiocentisis, a thin hollow needle is carefully inserted through the chest wall into the area of accumulated fluid, and the fluid is drained through the needle. Often, a little rubber "drain" is left in place for about a day to allow continuous drainage.

Please keep Barb and her drs (& the slow pharmacy) in mind,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/2/2009 2:09 PM (GMT -7)   
Oh my gosh... how awful for her. This is not the first time I have heard of hospital staff taking their time getting pain meds to the patients. I don't have a hx of pericarditis but I have heard it is really painful.

I hope that she has gotten the relief by now. Please let her know I'm thinking of her. She has just had too much to bear already, Bless her heart.
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 7/2/2009 3:10 PM (GMT -7)   
Alright Lynnwood. Showoff! turn
 CAROL
 systemic scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Detrol LA,spironal,Lisinaprol,furosemide,azithromiazin,plaquanil,pottassium,Citrocal,vicodin,percocet,tons of inhalers.
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/2/2009 7:07 PM (GMT -7)   
Thanks for the updates. I'm praying for you, Barb and I hope the docs and pharmacy get you better settled and that the lasix works and the fluid goes. Just taking the lasix can be awful. I will pray you get through that with no side effects and that they are checking your potassium and electolytes alot when you are on it. I hope you dont have to have yet another painful procedure. I hope this clears up. Much love to you and your family. I hope at least they have good cable tv.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/3/2009 5:59 AM (GMT -7)   
Thanks everyone, for keeping us informed.

Barb, I had no idea you had such a bad case of pericarditis, and I hate to hear that you're back in the hospital. Hopefully by now you've gotten your pain meds and are feeling a bit better.

You don't seem to get a break. Hang in there Barb.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 7/3/2009 4:02 PM (GMT -7)   
Got a fresh "Barb report" a few minutes ago. She *finally* got the pain meds yesterday and sounds much better today.

Looks like the lasix is helping, Barb had another echo cardiogram that showed the fluid is decreasing. She reports many bathroom trips to dump fluid. :-)

Barb is hoping to be released tomorrow (Saturday) for home...just in time as it sounds like her husband has caught the flu. When it rains it pours!
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/3/2009 10:33 PM (GMT -7)   
I'm so glad you are doing better, Barb, and getting ready to go backhome. I hope you don't get the flu! Maybe you can get some masks. I hope you have a happy 4th, and thanks Lynnwood for the update!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 7/5/2009 11:30 AM (GMT -7)   
Hi Everyone:
 
Thanks for all your well wishes and prayers.  I just wanted to drop a quick note to let you know I'm home from the hospital.  I've had myself a shower and will shortly climb into my nest and stay there.  I'll have to see my Rheumy and Internist this week.  I have Remicade next week.  Thanks for being there for me and I appreciate you all so much.  I'll post later when I feel stronger.
 
Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 7/5/2009 11:58 AM (GMT -7)   
Hurrah! Hurray! Barb's back home! :-)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 7/5/2009 1:56 PM (GMT -7)   
((((((((((((Barb))))))))))))) so glad you are home!
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 7/5/2009 4:08 PM (GMT -7)   
I'm glad you are home....

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/5/2009 7:12 PM (GMT -7)   
So glad you are home!!!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/6/2009 9:07 AM (GMT -7)   
So happy your home!
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


python
Regular Member


Date Joined Apr 2003
Total Posts : 104
   Posted 7/7/2009 4:23 PM (GMT -7)   
(((((Barb)))))
So very happy you are out of the hospital and home!
Donna
SLE, Lupoid arthritis, Mixed Connective Tissue Disease, Scleraderma, Polymyocitis, Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/7/2009 4:35 PM (GMT -7)   
Barb,

I hope that by now you're all tucked in and snuggled up. And I hope you feel better.

Love,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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