21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel
The Old Normal is no more so I and we have to find a New Normal...
So Sorry, Carol - you have every right to be infuriated and frustrated. And tired tired tired of coping with yet another loss and challenge. My heart goes out to you - with prayers to follow. Somehow you are going to get through this, too. And your brother has you to walk with him as he confronts this......Blessings to you both.
Hi El, and Judy, thank you so much for responding. This pass week the nurses have come out and did iv's at the house of steroids. Now he is done with that and has 2 weeks of 80 mil. a day of steroids. That's a lot of. They did a spinal tap last week and there was no problem with it. We are just praying it's some type of infection and this will help.
as for me I have a colonoscopy wenesday and that will be (as far as I know) the last thing I have to have done to have the results given to the board to make a decision. I don't get to be there. I don't know how long the process takes. The only bad thing was the scleroderma so I don't know what they will decide. I still have to see and dentist and a shrink but they don't need that done prior to a decision. It's been a long battle but what ever way it goes I will deal with it. It's the not knowing that is the hardest.
Frankly I am much more concerned about my brother than I am about myself.