Butterfly rash....

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Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 7/7/2009 9:54 PM (GMT -6)   
Do any of you get that butterfly rash only at certain times of the day or do you have it all of the time? I seem to get a very noticable reddness around 4 pm. and have it until morning and then it is just very light. Am I the only wierd one out there?
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/7/2009 9:58 PM (GMT -6)   
I've only had it a couple of times in the 10 years that i've had Lupus and it only lasted a few hours. Let's face it...all lupies are weird to some degree!! LOL!!! ;) Judy

New Member

Date Joined Jul 2009
Total Posts : 11
   Posted 7/7/2009 10:41 PM (GMT -6)   
When i get butterfly rash it last for at least a week without going away. i had it on and off mostly on most of 2007, i still get emotional thinking about it. i wish mine only lasted a few hours. one thing that does only last a few hours is my ear gettng red ( i get red ears along with my butterfly rash) when 1of my ear gets read its usually when i get overheated under my hat outdoors. i use the roseacea cream my dermi dx for my butterfly rash right away and its gone in a few hours. i agree with mjld we are all a little weird. im new here and never heard the term lupies, lol i love it!!
28yrs. old., lupus

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 7/8/2009 10:26 AM (GMT -6)   
It seems that stress is a really big trigger for my rash. I also notice when I get home from work, I guess its everything that went on during the day to bring it out. Headaches will bring it out frequently and I get them daily ususally around 2:00 so I see it then. Once I'm feeling better though, it usually disappears as fast as it comes on.
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid

Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 7/8/2009 8:42 PM (GMT -6)   
Mine seems to appear every morning when I first get going, then disappears after a few hours. When I am overtired or stressed the rash seems to hang around more. And anytime I am in the sun it gets worse.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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