First let me thank all of you for being here. I have been lurking around for awhile.
This forum has helped me cope and learn about dealing with the craziness of trying
to get a diagnosis.
My rheumy believes I have Mixed Connective Tissue Disease. I have never had a positive ANA. My bloodwork shows positive for RNP. I do have Raynauds, Fibromyalgia, Degenerative Disc Disease, Osteoporosis and Osteoarthrits.
I have a dent in my forearm and a punch biopsy was done. The results came back as a variant of Scleroderma. I have been seeing my rheumy for almost two years. He has had me on various meds, plaquenil to begin with; then added Imuran. I developed very low platelet counts, as low as 14. Rheumy sent me to a hematologist. I had two bone marrow biopsies performed. They came back normal. In the end I found out that I had Pseudothrombocytopenia. My body produces an antibody that attaches itself to my platelets. When my platelets come in contact to the chemical EDTA inside the test tubes my platelets clot. A citrate tube is now used to collect my blood. If any of you have low platelet issues I urge you to ask your doctor about platelet clumping due to EDTA. It might save you from having bone marrow biopsies. I am off the plaquenil
and Imuran. I have been taking Methotrexate,Lisinopril, Boniva, Savella,Folic Acid,
Cyclobenzapprine and vitamin supplements.
I am a 57 year old. married woman who has the support of a loving husband, family and friends but only people who are dealing with a chronic illness understand.I know that you do.
I am glad to be here,
Post Edited (crazykitty) : 7/19/2009 9:23:21 AM (GMT-6)