Rant - I hate this!

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FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 7/21/2009 4:02 PM (GMT -7)   
Started the generic cellcept 10 days ago with an "introductory" dose. After about 4 days, I upped to the regular dose. It worked! Pain and swelling all but disappeared! Hooray!
Next day the itching started. Day later, the hives started appearing. Maybe I could just wait out the reaction and I would adjust?
Couldn't stand it - I am a mass of bruises from scratching. I know better, but just one small "scratch" and I couldn't stop.
Called the doctor, stopped the cellcept. I am so mad! Now, according to the doctor, we will have to see if the reaction triggered anything else.
And did I mention that the cellcept was working? UGHH!! I had forgotten what it was like to feel nothing - no pain.
Sorry - had to get it out.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
7-11-09 Started CellCept - so far it's like I've been given my life back!
7-21-09 Last day of CellCept for now - allergic reaction - darn - and it was working!

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 7/21/2009 7:51 PM (GMT -7)   
So sorry that the generic Cellcept didn't do it for you.

Maybe that side effect won't bother you if you try name-brand? I know it's expensive (I used it to save my brain from mush), but depending on what symptoms it's helping with, it could be worth it.

(If a generic is going to bother me, it always starts with the rash or the itching!)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/22/2009 7:22 AM (GMT -7)   
Fran, sorry you are going through this. It is frustrating to find something that is making a
differance in your pain level only to find out your body cannot tolerate it. Hope you can
find a med that works without any crazy side affects.

Take Care
Robin

FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 7/22/2009 7:47 AM (GMT -7)   
Thank you Lynnwood and Robin.
Actually, it hadn't occurred to me that maybe the reaction was because it was a generic drug vs. brand name. I see my rheumy next month and I am going to ask if I can try again with the brand name. If he agrees, I will contact the manufacturer as someone else had suggested in an earlier post (I'm sorry - I can't remember who). Maybe I can get a break on price if my doctor is willing to help me out with a letter saying the generic caused a reaction. Worth a try! Thank you, again!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
7-11-09 Started CellCept - so far it's like I've been given my life back!
7-21-09 Last day of CellCept for now - allergic reaction - darn - and it was working!

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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