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New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/22/2009 2:10 PM (GMT -6)   
Hi everyone. I just joined this forum and I wanted to say hi. It seems like a very supportive group. I have lupus and fibromyalgia. I was diagnosed about 6 years ago but I suspect I've had lupus for most of my life (I am 51 years old). My younger sister has lupus too and our older sister has fibromyalgia. My son, who is 23, was recently diagnosed with fibromyalgia with irritable bowel syndrome and Raynaud's syndrome. Although my lupus is relatively mild, it has caused limitations in my life. I stopped driving a few years ago and I work from home now. I also am plagued with anxiety and panic attacks, which I'm dealt with since childhood. While I have learned to accept the limitations in my life for the most part, I worry about  my son who is having a harder time accepting his chronic health issues. I guess I've had more time to deal with it than he has. It's an ongoing struggle, isn't it? I look forward to getting to know you and share with you.

Regular Member

Date Joined May 2007
Total Posts : 475
   Posted 7/22/2009 4:50 PM (GMT -6)   

As you've already discovered, this is a wonderful support group. What you say about your son is so true. It is so much harder to watch our loved ones suffer than to deal with this, ourselves. There are a couple of "youngsters" on this board who I'm sure will chime in (I am your age) and perhaps offer some tips for your son. My son is 28 and suffers from fibromyalgia and psoriatic arthritis. He was diagnosed about a year ago and still is resistant to some of the necessary lifestyle changes. But, like everything else, adjustment takes time and patience - two things that "youngsters" don't have an overabundance of! LOL smilewinkgrin
Hope you are feeling well.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
7-11-09 Started CellCept - so far it's like I've been given my life back!
7-21-09 Last day of CellCept for now - allergic reaction - darn - and it was working!

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/22/2009 5:20 PM (GMT -6)   
Thanks for the warm welcome, Fran. And thanks for reminding me that adjustment takes time and patience. I guess I need to remember that my son hasn't had the years to adjust that I have had. Having said that, there are still times when I get angry about the changes I've had to make because of illness too, but then I remind myself to be grateful because it could be so much worse.

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 7/22/2009 9:59 PM (GMT -6)   
Just wanted to add my welcome! I also have a TON of autoimmune diseases in my family! I've been sick for 10 years, since I was 27 and just when I think i've adjusted and sort of 'accepted' my life as it is, Lupus throws me a curve ball and i'm back to square one!! I do believe it's an on going process!

It does help immensely to come to this forum and chat with people who truly understand what Lupus feels like! Judy

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 12:16 AM (GMT -6)   
Thanks Judy. It does help to chat with people who understand. It is hard to explain how you feel to people that don't know what it's like to live with lupus.
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