Tell me about remission

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firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 7/24/2009 5:07 PM (GMT -7)   
So, I'm tapering off my Methotrexate and am currently only on 5 mg per week (HOORAY!!)  Anyways, I think I'm on the road to remission.  I've been told that remission means no symptoms, no meds.  Does the fatigue go away?  I've only had minor aches and pains in the last few weeks, which if I take a rest and use my heating pad they are gone by the next morning.  Also, I'm in my 30's so age could have something to do with some of the achiness.  Lately though I've been sleeping alot-not that I mind, its something that I'm really good at.  I have been exercising more and usually work 8/12 hours days at the bank, so I think its okay to be tired at the end of the day especially after work and then work at home.  I guess I'm really just concerned about my need to nap more and more and wonder if that may be normal.
 
Thanks.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/25/2009 12:06 PM (GMT -7)   
Tammy,
I was in remission a long time ago for almost 3 years. Had no symptoms and no meds whatsoever! I hope and pray you are headed in that direction!!! Judy

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/25/2009 2:09 PM (GMT -7)   
 
  When you are in remission, does your blood work goe from positive to negative?
 
    How is it possible for me to have a negative ANA and a positive RNP?
 
   Hope someone has answers. I am so CONFUSED. Rheumy thinks I have MCTD.
 
   Thank you,
             
                 Robin

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/25/2009 2:49 PM (GMT -7)   
Robin,
You may want to start a new thread with this question. I'm not sure. I have never had a positive ANA to start with. All of my other markers did go to normal while I was in remission. Judy

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 7/25/2009 3:27 PM (GMT -7)   
Thanks Judy. I will post a new thread.

Robin

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/27/2009 5:04 AM (GMT -7)   
I'm not sure about lupus remission, but RA remission means no symptoms WITH meds.  As soon as you go off the meds, the symptoms come back.  I'm technically in remission for RA, but I take enbrel and mtx, along with tramadol. 

Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Lupus
Current Meds: Enbrel, Methotrexate, nexium, tramadol, nasonex, Nifedipine, Folic Acid, Tylenol PM


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/27/2009 9:06 PM (GMT -7)   
Never had remission, it just keeps getting worse. I think that most people stay on much of their meds. I'm on plaquenil and if I feel good and my tests go lower, and I try to stop it, it comes right back bad. I hope maybe you've got remission and I'm glad you can get off the MTX for a while.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/27/2009 9:42 PM (GMT -7)   
I haven't had any +Ana's or signs of inflammation in my blood work for almost a year. I'm slowly coming off of the prednisone, down to 4mg now. Still on plaquenil and an anti-inflammatory (Feldene).

I asked my rheumy if that was "remission" -- he smiled in such a way as to tell me he doesn't really believe lupus has a remission -- instead he said "your lupus is quiet now".

Depending on circumstances, too much stress, to little sleep, or wrong or not enough food -- I feel more poorly than other times. Mostly I feel fairly ok, but not enough energy to "think" more than 2-3 hrs a day, and have to refrain from too much physical activity.

So that's all I know about remission from my spot in the world - dunno if that helps any or not.
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 7/28/2009 5:51 AM (GMT -7)   
Ok, so perhaps I'm really desparate to get into "remission".  I really want to have at least one child.  I'm in my 30's and its not going to get any easier for me to carry a child, so I'm just hoping my symptoms subside long enough for this to happen.  I've been doing really well though lately so I hope that's a good sign.  I also know a lady who was in remission for 20 years, but then it came back with a vengance.  That scaires me even though I know everyone is so different.  Anyways, I'm hoping someone here has a magic wand and that they might use it on me:) 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/28/2009 6:33 AM (GMT -7)   
I googled "Lupus remission" and found a terrific speech given by a doctor at Johns Hopkins. In it she talks about how different meds can cause remission, and explains things in a way that we can understand. She also mentions lupus and pregnancy. She gave the talk in 2002, so hopefully there have been discoveries made since then.

I found this to be extremely interesting and hope you do too.

www.hopkins-arthritis.org/arthritis-info/lupus/#top
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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