Went to my rheumy today and was told I don’t have an AI at all even though while on prednisone and plaquenil my ANA went from 1:1280 to 1:320 not to mention I have felt much worse since I was taken off of them last Dec. I’m so frustrated I was told I was fat and have sleep apnea and that has caused tennis elbows problems, rotator cuff problems, muscle weakness, Raynaud's phenomenon, sore hands, feet, hips, knees, ankles, wrists. The +ANA, very high CRP and ESR mean nothing. He recommends a vigorous exercise rehab. I get wiped out and suffer from just cooking or doing the dishes is he kidding. Oh and my rheumy doesn’t believe in Fibromyalgia as I learned from the Lupus clinic rheumy when I was referred there for a second opinion in April at which time she diagnosed me with Fibromyalgia. How bad does it have to get to be diagnosed properly? I guess if it gets bad enough they’ll be able to diagnose something. I’m just hoping its not at the autopsy.
Sorry for the rant I’m just so mad and frustrated right now
Thanks for listening