"All in my head" syndrome

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New Member

Date Joined Aug 2009
Total Posts : 12
   Posted 8/8/2009 3:56 PM (GMT -6)   
Ever wonder if life would be different -without- a diagnosis?
Yah yeah, I know we spend months/years trying to get a diagnosis to have answers and closure to the mystery, but just follow me for a second.
If we continued to believe our symptoms were all 'in our heads' and just move on, would we be "healthier"? (obviously not physically but I'm talking the way we run our lives)
My mouth sores and itchy skin, as I've been complaining about all day, drive me nuts but will past in a few days and things should return to normal. LOL well my kind of normal...
If I didn't have SLE, I would chop it up as stress or hives and move on.
However I went to the doctor's on wednesday, told her everything that has been going on, she suspects Lupus is acting up and now today I am so sick. Light headed and tingly brain, tired and nauseous, so irritable and I'd love to just crawl in a hole.
Now, if I realy dissect this scenario, I'll tell myself: Katie, you've been lightheaded for over a week now, it has nothing to do with being told Lupus is back.
There is a reason why I told my doc all that was going on, because it was actually happening right? But what if I hadn't? Would I feel like crud today or have another happy-go-lucky day with a few obsticles? All these symptoms would eventually go away and I wouldn't be stressing about preparing myself and my household for a flare!


Katie aka Lupus Poopus 

Dx: Lupus, Hypothyroidism, Anxiety disorder, Bipolar,

Possibly misdiagnosis: Fibromialgia

Suspected: Sleep Apnea, Carpal Tunnel

No current medication


Quoted from about.com:
The majority of lupus patients lead normal lives. The worst adversary comes from within, when the patient loses hope, loses will, and gives in to frustration and depression.


We must all stay positive!

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/8/2009 4:47 PM (GMT -6)   

I am one who was initially diagnosed as borderline lupus, then the diagnosis changed to
Undifferentiated Connective Disease and now possible Mixed Connectitive Tissue Disease.
A skin biopsy confirms I have a variant of Scleroderma, probablly linear.

Before I recieved any of these diagnoses, I definately knew there was something terribly
wrong with me. I have other medical issues as well.

When I was given the diagnoses, that is when the reality really hits. I believe attitude
is everything. Initially I was freaked out, but decided early on I was going to be my own
best advocate. Not to say I never have bad days, I worry like everyone else.
Somedays I even have my own pity parties, but I try to end them quick.

To answer your question Would life be different without a diagnosis? Yes and No
I would still be hurting, but knowing what it is makes it very real and very scary.

Hope you feel better
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/8/2009 9:23 PM (GMT -6)   
If I lived that way, I'd be dead.  I have more of a life now than I did 9 years ago.  Getting my diagnosis and medication has saved my life.  This is definitely not an "all in my head" syndrome.  Not even close.  I'm glad you told your doctor, Katie.  I hope you can get this flare up under control very quickly wink .
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums

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