don't know what is going on with my hubby

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cookie monster1
Regular Member

Date Joined Aug 2009
Total Posts : 41
   Posted 8/15/2009 10:10 AM (GMT -6)   
Hi....this sight seems really great and helpful!
My husband has been having problems with a lot of symptoms for a few years....he has been to 2 rheumies a neurologist and going to a new rheumie next month.  his ana came back neg on 3/3/09 and then came back slightly elevated on 3/30/09 and his double stand dna came back slightly elevated.  The first rheumie did a ton of blood work and told him that he does not have lupus it might be we went to the 2nd rheumie to get another oppinion (we had the test results faxed to him)  he then said it looks like he might have lupus????? so we are know going to start fresh with a new one shakehead   
It is terrible tho he is always feeling like he has the flu, tingles from head to toe all the time, his joints ache terribly, terrible fatigue, his eyes mess up on him sometimes, there is more but does anyone have these symptoms? 
We are not sure what to do it seems like these docs just perscribe meds and send you on your way. 
He has been taking hydrocodone for a few years to deal with the pain...he has been off it for about 2 weeks now tho...which just made his pain worse of coarse.  He just started taking Lyrica last night as 6 docs have told him to take it....he has not been wanting to take any meds until he is sure he is taking it for the right reason....but he feels like he doesn't have a choice cause he is tired of being in pain all the time.  Any help or advise would be greatly appreciated...THANKS
Oh his older brother had the same symptoms just a few years prior they have not diagnosed him with anything either however they are leaning toward RA...he is taking the Lyrica and malaria drug and he says he feels much better.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/15/2009 10:39 AM (GMT -6)   
Hi cookie Monster,
Welcome to the forum.  You guys are doing exactly the right things. Getting a diagnosis can take some time unfortunately.  All the puzzle pieces have to come together.  Most of us have seen a ton of doctors.  Getting 4, 5, 6 opinions is necessary sometimes.  Your husband's symptoms can be many autoimmune diseases.  As well as Fibro.  AI diseases tend to have overlapping symptoms which makes the diagnosis difficult.
Make sure you keep a detailed diary of all his symptoms.  Also take pictures of any rashes he might have.  Any time you have questions just let us know okay.  We'll help you as much as we can!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums

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