Lupus & Pregnancy

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Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 8/17/2009 1:51 PM (GMT -7)   
Hello all. I have been on plaquenil & naprosyn for a month and a half and although its not really helping my fiance and I have come to the realization that we would like to have another baby. I am not on any birth control because like my mother and grandmother it gives me chest pain and severely messes up my cycles. We have not been using anything as protection(i am sensitive to condoms and lubricants) however I got my period this month but it is just something we have talked about...I was wondering if anyone is having the same issues or has any suggestions? This is stressful for us because I dont want to be selfish and harm the baby if we did concieve :/ Thanks. -Brittanee  
 
 
*Lupie Britt*
 
-In the "loop" of a diagnosis-They wont even consider it UTCD!- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Dexacort(dexamethasone) Nasal Spray- once daily; One-a-Day womens vitamin- once daily; occasional excedrin migraine.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/17/2009 4:00 PM (GMT -7)   
plaquenil is safe in pregnancy. I took it and a host of other meds and my son came out fine. You will have to give up antiinflammatories though.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 8/19/2009 12:05 PM (GMT -7)   
The antiinflammatories do not help me anyway lol Maybe with stiffness but I guess I will have to switch over to tylenol. I also read prednisone is also safe so I will suggest that if things get too bad and thank you for the advice! :)
 
 
*Lupie Britt*
 
-In the "loop" of a diagnosis-They wont even consider it UTCD!- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Dexacort(dexamethasone) Nasal Spray- once daily; One-a-Day womens vitamin- once daily; occasional excedrin migraine.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/19/2009 12:11 PM (GMT -7)   
you may have to give up the nasal spray as well. singulair is safe in pregnancy as is benedryl.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 8/21/2009 8:28 AM (GMT -7)   
Hi! Britt,
I had two healthy babies before I was diagnosed with APA Syndrome and then lupus. I commend your caring about your child before you even have one. All meds are classified according to levels of harm to the fetus, their ability to cross the placental barrier, and whether they have even been studied. Each med gets an alphabet letter, A,B,C, D or X, and any drug book at the library or the PDR on line will give you the full explanation and the pregnancy classification for each drug. I looked up all of mine. I lost a son to Group B strep, was hospitalized for strep and staph, and had 5 miscarriages at 8-9 weeks due to high antistrep antipodies, and a clotting disorder called Antiphospholipid Antibody Syndrome, which is where large antibodies in my blood literally plugged up the tiny blood vessels in the placenta, and caused the pregnancies to be lost. My heart is forever scarred. I finally saw a specialist who said, after treating my last pregnancy with aspirin and heparin, that if I had only come to him after the first lost baby, there was a chance the outcome would have been different. So please find a good infertility specialist, someone who knows how to handle autoimmune illnesses, ask your GYN for a referral, go to the nearest University that has a medical college, ask to see a lupus specialist, just in case.
hugs,
sue,
ps. and don't forget to have fun in "the moment"  tongue
 

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 8/21/2009 11:11 AM (GMT -7)   

Hey all. Thank you for your replies. I am having so many mixed feelings about the baby process. I want one so much but I dont want to have anything affected in regards to me or the baby. I actually got switched from the dexamethasone back to the flonase I was on before but because its not working I have to see an allergist sept 3rd. They want me to go for allergy shots but I know that you aren't supposed to have them with AI diseases and honestly I dont know what they will do considering I have taken other stuff and it doesn't work. I did read however they sometimes give oral prednisone for severe allergies..wouldn't it be wonderful if they did that and put everything into remission? I read prednisone is safe during pregnancy because its a natural hormone created by the body anyway. That said I am currently on plaquenil, naprosyn which I know I cant take, flonase, a multivitamin and excedrin migraine. I just wish the emotional part wasn't so hard :/ Thanks again you guys :)

P.S. I can't take benadryl..for some reason my mom and i get really anxious and jittery with it.


 
 
*Lupie Britt*
 
-In the "loop" of a diagnosis-They wont even consider it UTCD!- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Dexacort(dexamethasone) Nasal Spray- once daily; One-a-Day womens vitamin- once daily; occasional excedrin migraine.

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