can u have lupus w/ a neg ANA ??

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New Member

Date Joined Mar 2009
Total Posts : 1
   Posted 8/19/2009 1:49 PM (GMT -6)   
 Hi Group;
 So glad you guys are here, not really, but you know what I mean ?
 I have, for the past 7 yrs or so- chronic fatigue, there always but do have (sub-set
 days)  3 or 4 in a row were I could just stay in bed, major effort to do anything.
 Have "seizue disorder" of no known origin, joint pain, knee's, elbows, hips.  urine
 incontnance w/ minor but frequent  uti's.  Also on anti depessants, and have tried
 several- don't make any difference w/ my "lack of energy".  Have a very hard
 time sleeping thru the nite, wake up at least 4-6 times every nite.
 If anybody has any idea's......Please Share....have been to many Drs. and no
 diagnosis,  except possibl mild pulmonary hypertenson, have sob off and on.
                                     thank you
                                               with the best of intentions,

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 8/19/2009 2:13 PM (GMT -6)   
yes it is possible to have a neg ana and have lupus it is said to be rare but it does happen, I am living proof though maybe not anymore since I did have a single low positive ana reading during one of my last ana tests.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

Regular Member

Date Joined Mar 2006
Total Posts : 67
   Posted 8/20/2009 2:34 PM (GMT -6)   
It could be Lyme disease.

It encompasses all of your symptoms including involuntary movement (seizure) random joint pains, frequent UTIs, sleep disturbances, along with major chronic fatigue.

The thing is: Lyme tests are only 30% accurate. This means they really should not be using them at all to rule it out.

And it means that only a Lyme specialist can rule it out or diagnose you (clinically).

You can get it if you are outdoors at all (or you have an outdoor pet) even just in your yard or a local park, since a tick bite is painless it often goes unnoticed until you start getting the symptoms you describe.

Of course your symptoms could be a number of other diseases but I thought of Lyme when I read your description.

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 8/21/2009 1:10 PM (GMT -6)   
First of all, welcome to the forum.  Sorry you are having so many problems.  How frustrating to not have a diagnosis!  I have SLE and have never had a positive ana.  I have elevated sed, RF, white count and c-reactive protein.  I sure hope you find someone who is able to help you soon!  God bless you, Judy
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