disability and lupus

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spangie
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/22/2009 1:33 PM (GMT -7)   
Anyone out there file for disability and recieved it. I have applied and now I am an appeal. I just want to make sure i am doing everything right

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/22/2009 2:45 PM (GMT -7)   
quite a few of us get disability. I am sure if you ask specific questions you will receive guidance if you so wish.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/22/2009 3:39 PM (GMT -7)   
I have disability and it is quite a process! I had to appeal twice...I eventually called my Congressman and his office assisted me greatly in getting my disability started! I know some here have hired lawyers and the wait varies by state. Hang in there and good luck! Judy

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 8/22/2009 3:47 PM (GMT -7)   
I applied and was on SSDI for 2 years before turning 66 and going on SS.  The process is not an easy one and the older you are the easier it is to qualify.  The basic requirements are that you cannot return to your job and are fully disabled and expect to be for at least a year.  The standards are relaxed over 55.
 
SSDI is bascially a process of denial however.  Some conditions like ALS or stage 4 cancer will be approved quickly but most AI diseases are in a gray area.  SS stats are that 65% of 1st applications are turned down. I was a quadriplegic (I have lupus and polymyositis) with little hope of ever walking again and they just said I will be OK.  2nd apps are even less likely to get approved and only 10-15% get approved.  The 3rd app goes to an administrative law judge and 65% get approved but the wait to see an ALJ in some states is 2-3 years. 
 
I applied 3 times and the 3rd time the ALJ did not even hear my case and approved it in 2 weeks.  My condition had improved but I was still unable to work. 
 
The application process is one of denial and it seems they look for mistakes and anything to deny applications.  I did get an attorney who specializes in SSDI for the 3rd app and he made sure everything was in order.  He also pointed out that despite my condition and age (63 at the time) mistakes were made in the application and letters from my well intending docs.  These lawyers take cases on contingency and by law can only charge 25% of retroactive compensation up to a max of $5300.  Talking to one is a good test of wether or not your case has merit.  They will not take a case they think will not be approved.
 
 
Others on this site have applied so ask your questions.  It is possible to get SSDI for lupus but getting approved for almost any illness is usually a fight so prepare yourself.  It pays to be persistent.  You will get whatever your full retirement SS income would be and younger people will probably be reviewed for any changes or improvement in their condition.
 
Good luck,
 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


spangie
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/22/2009 6:11 PM (GMT -7)   
I am just wondering what I am suppose to answer some of the question on the DDS form. Like how far can u walk. It depends on the day and if it is up hill or downhill. Personnel care somedays are great but someday it hurts to brush my hair. what do i put? I am unemployed and i have enjoyed not being in severe pain everyday like i was when i worked everyday. I want to cry because i may have to get a job to keep my family eating. It is a pain in the butt that people have true disability can not get benefits.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 8/22/2009 7:36 PM (GMT -7)   
Put down the worst days, not the best days. If you had to do it every day how would it feel, day after day after day? I personally had a hard time just brushing my teeth for a while there....

In GA the wait is very very long to get a hearing, and the congressmen/senators are not at all helpful. Spend your time hiring an attorney that specializes in this stuff and in getting all your doctors to agree on how very sick you are.
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


spangie
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/23/2009 9:18 AM (GMT -7)   
I just do not understand how someone who has never met u, is making a decision about your life.

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/24/2009 4:20 PM (GMT -7)   
I feel the same way! I feel like they should have to lay on eyes on you at the very least and deny you in person! Judy
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