Butterflake/Lynnwood-Lupus Walk

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aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 8/24/2009 8:07 AM (GMT -7)   
Hey there! This year I was thinking about participating in the Lupus walk for Charlotte in May and I remembered that you ladies participted in one last year. Can you give me a little info on what I need to do, how the teams work, and also what it was like? If you ladies are interested in doing Atlanta again this year, thought I might come down and walk/hobble with ya :)!

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 8/24/2009 9:19 AM (GMT -7)   
It was sponsored by the local chapter and all the details were pretty clear from a web link on the chapter webpage. I imagine the Charlotte version is the same.

Seems like it was in the spring here - Butterflake isn't feeling very well these days, and I can't say I'm the greatest either - so we aren't walking this month!

It was a mile here I think, or maybe 1 K. Just a bunch of folks strolling along leisurely, wheelchairs, walkers, etc included.

Note that conversation about it on HW needs to be limited somewhat, as we aren't allowed to post about fund raising activities.

Cheers
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 8/25/2009 4:46 AM (GMT -7)   
I am so sorry you ladies arnt feeling to well! Donna(if you are lurking around) and Lynnwood please know I am thinking and praying for you that you both start feeling better! Thank you Lynnwood for the info and I will be checking out the website to see what I can find.

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 8/26/2009 5:00 PM (GMT -7)   
Hi Amy. This is an example of the email I sent to a few of my friends re the walk:

Donna worked at CDC when she was diagnosed with lupus in 2005.  She is now permanently disabled, but will be walking using her snazzy purple walker and is Captain of Team Butterflake.

 

The 1.5 mile walk will be held April 25, 2009 in Piedmont Park at 4:00 PM.  Donna would like for you & your friends to walk with Team Butterflake so please feel free to call her at *****.  Pets on leashes, baby strollers, and wheelchairs are welcome.

 

As is usual for lupies, I can't remember how much my team raised, but I do know Lynnwood raised the most. I was very heartfelt to see all those walkers for lupus. If I ever get my plantar fascitis under control, I would like to walk again next spring. Best of luck Amy. If you have the spoons, it's worth the time. Love, Butterflake


Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, lisionpril, actos, lipitor, nexeum, prozac, wellbutrin, ambien PRN: xanax, neurontin, tylenol arthritis, flexeril, nasonex, phenegren, vitamins, Acupuncture.  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 

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