Thanks Fran and Stacie - always nice to know you have company. I'm sure I'll have some questions down the road, but strangely, the only one I can think of right now is what kind of mustard is gluten free? I just got back from a 3 hr "road trip" and my brain is fried......and I'm hungry - no more quick stops for take-out. Better go figure something out.....thanks for your responses.
Thanks for the links, Stacie - the "safe" and "unsafe" lists are really helpful. I'm trying to eat things with few ingredients so I can better decipher. Mustard seems to be one of those that seems to have pretty much the same ingredients from yellow to Dijon, but it still shows up on the "avoid" lists.
The doctor has me on quite a few vitamin supplements to counteract the malabsorption - I think you're a lot younger than I am, but did you have to do that as well when you were first diagnosed?
And I'm almost afraid to ask - but chocolate doesn't seem to be taboo - although it often doesn't say "gluten free" the ingredients don't indicate a problem for many kinds, especially the organic and trade free. Advice?
Thanks for the help -
Hey Fran, thanks for the tips! I appreciate any and all. I had read about the toaster thing, but didn't quite know what to think about that. I'm glad you confirmed the importance of that, and my sense that the sensitivity will only grow with time, which is not a happy thought - but as my mother always said...forewarned is forearmed. No potato or soy? Wow, you really are limited! Can you tolerate dairy? How did you figure out you were allergic to all that? Did it come together all at once or did you gradually become sensitive to each in turn? You must be down to rice and corn. I think I would have a meltdown if chocolate was on the avoid list. We have gotten chocolate bars from Equal Exchange that have no soy in them. There would be some contamination from tree nuts during processing - but if you can have nuts..............then again, why wake that monster, right?
I'm really hoping this diet will improve my fatigue - which is way more troublesome than stomach problems. Maybe when I catch up a bit on the Vit B and D.....
Have a great weekend
Stacie, you made my day! I didn't realize Hershey's would be okay - that will help just knowing it's still there for me (Hershey nuggets w/ almonds my current fave). I then went looking and found that even M&M's are okay! Have generally banned those from the house, though, because when they're around I can't find my self-restraint button.
I did have a stomach upset over the weekend. Couldn't eat anything for awhile. By Monday I could handle food, but not the vitamins. Am waiting a week and then will start back on them slowly. I don't think it was a gluten reaction - as I have been very careful - not sure what one would feel like, though. Did you feel better right away, or did it take some time when you went gluten free? I've always had trouble taking medicines - do you think there is a connection?
Thanks for the help!
Hi Fran, I guess we do what we gotta do....but gosh, those are a lot of restrictions!!! I agree that it seems that celiac, while restrictive, still leaves open many options. I do think some of the medication troubles I have had, including vitamins, may have been from the wheat fillers. (I never would have thought about other products either!) I guess if my tolerance improves, I'll have my answer. I did call the manufacturer of my generic plaquenil (after being directed there by the pharmacist who couldn't answer my question about a possible gluten source) and was told that "starch" generally indicated corn starch. When pressed, he admitted that they don't "test" for it, but stated that wheat products are "not intentionally used". But basically, he would not call it gluten free. Were you able to tolerate a generic plaquenil or are you taking brand name? I'm sorry, just ignore me if that's getting too personally specific. I did find an index online for gluten free medicines and Plaquenil was listed as brand name - the generic was not.
I haven't seen corn spaghetti - but I'll look for it and the Namaste pancake mix. It's helpful to have these suggestions....we have to travel nearly an hour to the grocery that has a wide variety of gluten free products, and having a brand name to look for makes it much easier - so thanks again!
Hi Staci and Fran - I am learning so much with each of your posts - such great information - thank you both so much!!! I love having the brand reccomendations. We had brown rice pasta for dinner tonight with garden vegies and some italian turkey sausage (Jenni-O by Hormel - they have a great website that lists all their gluten free products).
Staci, your description of a reaction kind of matched what I thought might have been either a stomach bug or a rebellion against all the vitamins this past weekend. As it turns out, it just might have been the toaster after all, (thanks Fran) though I didn't think it would happen after just 2 weeks. I'm not willing to experiment on that one, however - will be buying a new toaster. I am having less pain, it seems, over the last day or two, and slightly more energy....knock wood and here's hoping!
Thanks again for all of your help and support