New Lupus Diagnosis

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Pepe36
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/3/2009 4:05 AM (GMT -7)   
Hello All,
 
I am new here.  My first post.  Yesterday I received my official diagnosis of Lupus.  Every test ANA, anti DNA,  I'm sure you all know them.  Anyway they all came back positive twice.  So I guess it's official.  I also have Myasthenia Gravis which I have had for 2 years.  I felt like the MG is just getting under control, now Lupus.  I guess my question is, does anyone have any advice or information regarding my hair loss.  I can't seem to stop it from falling out.  My doctor didn't have any information.  I figured this would be the best place since you all have been through it.  Hair loss, fatigue and joint pain are my main symptoms right now.  I have chosen not to go on any medication, as I have tried most of them for my MG and did not receive any benefits.  Thanks so much for any in put.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/3/2009 6:53 AM (GMT -7)   
Pepe,

Is your doctor a rheumatologist? If not, I'd advise that you find a good rheumy who's an expert on lupus. I can't imagine a rheumy not having any information on hair loss.

Lupus and Myasthenia Gravis are completely different diseases, and even though you didn't receive any benefits from meds when treating MG, that well may not be the case with meds for lupus. One of the things you want to avoid is waiting around for your lupus to become more serious, and some of the meds we take can help prevent that from happening.

Check out the following site that talks about hair loss.

www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=453&zoneid=76

Good luck.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Pepe36
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/3/2009 7:09 AM (GMT -7)   
Pat,
 
Thank you for your reply.  My doctor is a Rheumatologist.  However, I did not feel that comfortable with her.  We discussed Plaquenil, however, that is contraindicated for MG.  It will exacerbate it.  So, you think the Lupus will get worse if I don't do something now?  Thanks for your help.  Dorothy

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 9/5/2009 6:00 AM (GMT -7)   
Hey Pepe, Welcome to HW...I saw your last question about your lupus will get worse if you don't do something...I would say yes. Pat is right, you do not want this to become more serious...treat the beginning symptoms and hopefully it will not get more serious!

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/5/2009 7:46 AM (GMT -7)   
Hi Pepe and welocme. I agree with the others about getting your lupus treated. If you are not comfortable with this rheumy, keep looking until you find someone you really like. I finally found a good rheumy on my 3rd try. Take care and keep us updated on how things are going.
dx: UCTD (lupus)
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   

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