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FW
Regular Member


Date Joined May 2007
Total Posts : 480
   Posted 9/3/2009 4:25 PM (GMT -7)   
Hello, everyone. Hope you are all well.

Had to share - I cried today, my doctor (of 6 years) has taken another job. I had to jump through so many hoops to get my insurance to let me see him (he's tertiary - well, he was). He listened - he cared. And he has me on a great treatment plan - I am seeing results!

Obviously, I realize he has to do what's best for himself and his family, but I will surely miss him.

You all know the many different doctors we have to go through to find the right one. And the wait for a dx. Do I have to do that all again? Will I have to come off all meds and start the whole testing process? Aaaackkk!

If you have a great doctor, give him a hug (and if he is in NE Ohio, PM me!). Really - PLEASE!

Have a good day, everyone.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 9/3/2009 5:54 PM (GMT -7)   
I feel bad for you, I couldn't imagine what I would do if my doctor moved away, etc.

I hope the doctor that takes his place is just as caring and will realize you are on a good treatment plan and won't move things around! Good luck
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/3/2009 6:07 PM (GMT -7)   
I have a good doctor in south eastern michigan if you are interested.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7216
   Posted 9/3/2009 9:36 PM (GMT -7)   
I'm so sorry, I know exactly how you feel. My wonderful super dr got a rare cancer and died. I found another that is sufficient, but it's not the same at all. If you have the energy to keep looking until you find another great one, I hope you will do it!
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/4/2009 8:41 AM (GMT -7)   
Oh Fran, so sorry to hear that!  I know how much difference it makes to have a good, caring doctor who listens and responds wisely.  I hope you can find another who can step into and fill his shoes.   Try and think positive - and there is an active Lupus support group in the Cleveland area - they have a list of docs specializing in  Lupus - have you checked that out? 
Good luck!
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD 2007:celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/4/2009 8:50 AM (GMT -7)   
I am so sorry Fran, it is like losing a friend, somone who has been there to help.

I hope you will find an understanding, caring doctor soon!


Robin
 
 possible MCTD, Raynauds, Fibromyalgia, Osteoporosis, Degenerative
 Disc Disease, Osteoarthritis, High Blood Pressure, Migranes and
 Pseudothrombocytopenia, biopsy shows a Scleroderma variant
 MEDS: Methotrexate, Savella, Boniva,Lisinopril, Folic Acid, Flexeril, and
 Vitamin Supplements


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/4/2009 3:37 PM (GMT -7)   
Oh no. I don't know what I'd do if my doctor left. I really hope you find another really good doctor. Would your current doc be able to recommend someone to you?

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 9/5/2009 5:54 AM (GMT -7)   
Oh wow, that is horrible! I would be lost without my doc. I hope they will recommend you to some just as great

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1596
   Posted 9/5/2009 7:09 AM (GMT -7)   
Oh Fran! I'm so sorry that your doc is leaving. Even if the doc isn't a frantastic one, we all develop a report with them. I really hope you can find another good doc and don't have to start meds over. Love, Butterflake

Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, lisionpril, actos, lipitor, nexeum, prozac, wellbutrin, ambien, cholestryramine, lomotil PRN: xanax, neurontin, tylenol arthritis, flexeril, nasonex, phenegren, vitamins, Acupuncture.  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


FW
Regular Member


Date Joined May 2007
Total Posts : 480
   Posted 9/5/2009 7:41 AM (GMT -7)   
Thank you everyone!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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