Just Diagnosed with UCTD, What should I expect?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

BlueEyes399
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/5/2009 10:23 PM (GMT -7)   
Hello All,
I am a 39 Male I was just told I had UCTD. I am relieved to know that I am not just a lazy unmotivated person who is always in pain and who was starting to think it was all in my head. I was kinda stunned when I walked out of the doctors office, but now the research starts. Since I have no idea of what to expect. A little background on me I have always been an extremely energetic person until about 9 years ago. I started getting massively fatigued all the time and gained alot of weight. Hair started falling out and I was getting a red rash around my nose and mouth area. I have very good insurance and started going to my doctors about this years ago, but it was always said to come from my job. I usually work 70-100hrs a week. I was told to eat more fruit and veggies and work less. But this never helped. about 3 months ago my doctor retired and the new doctor pulled out all the stops and sent me to everyone and where. I was Just told to start talking Plaqeril and Vitamin D and do more bloodwork.

1)What Can I expect from the Plaqeril?
2) Any foods that I should avoid?
3) Anything I should do that has been shown help immediately?

Thanks in advance for any help

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/5/2009 10:31 PM (GMT -7)   
Check out the information in our first topic "Lupus Resources", where we have condensed some of our best advice about the "Lupie Life".

Plaquenil gives some people a bit of tummy trouble at first - remember to take it with food. Some people have better luck taking it with the evening meal rather than the morning meal, I personally have never had trouble with it.

You won't see any quick results - it takes 4-8 weeks before most of us notice anything, plus it is kinda' a "stealth" med....usually people don't think it's doing anything, or not doing much. So it sometimes gets stopped....AND THEN we find out it really has been doing a whole lot!

I can't think off hand of any foods to avoid, but you should try to stay out of the sun. The sun (and the heat) can rapidly stress & deplete our bodies, and tire us out beyond belief. Easier to avoid than to try to recover from.

Hope that helps -- others will come along and post, but maybe not till Tuesday evening, as it's a 3-day weekend in the US & Canada.

Take care,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/6/2009 7:37 AM (GMT -7)   
HI and welcome. I don't have a lot to add to the great info that Lynnwood gave you. As overwhelming as it can be, it can be kind of a relief to get a diagnosis. So many of us were made to feel like it was all in our heads.

Just be patient with the plaquenil - it can take several months to really work and taking it with food will help some with any stomach problems. My stomach problems went away after about 3 weeks.

Take care.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 9/6/2009 7:53 AM (GMT -7)   
Welcome!
Lynnwood and Hippimom both covered everything you should know, but I wanted to add another welcome.

Try to pace yourself, taking rests between activities (and EVERYTHING is considered an activity - like taking a shower) - this helps you avoid some of the worst of the symptoms. As you adjust to the meds, you should start feeling better.
Good Luck and Welcome!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


linnyco
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 9/8/2009 11:15 AM (GMT -7)   
I have MCTD Mutliple Connective tissue disease . Much the same thing I think .Plaquenil keeps me from flaring up and being in horrible pain .I get no side affects from it as far as I can see . I use prednisone when I do flare up which is once every 3 months or so. I really don't understand my condition well .I have fibromyalgia too so that confuses things more . I've tried to educate myself but when your disease shows symptoms of 3 or 4 diseases it gets pretty confusing to figure out . My symptoms were pain ,pain ,pain and rashes mostly,of course my blood work showed my ana titre was high and other stuff I guess ? I really need to ask more questions lol

Linda
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 7:30 PM (GMT -7)
There are a total of 2,731,919 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151134 registered members. Please welcome our newest member, Linda Bee.
292 Guest(s), 13 Registered Member(s) are currently online.  Details
rowingmom, bluelyme, Helgramite, jennydancingfish, Xmaslover, White Bird, Linda Bee, poohcheez, Randy Eichner, Tall Allen, multifacetedme, julymorning, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer