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Regular Member

Date Joined Nov 2006
Total Posts : 491
   Posted 9/8/2009 9:43 PM (GMT -6)   
Does anyone here have problems with their pancreas being inflammed often?
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 9/9/2009 10:08 AM (GMT -6)   
Hi King and welcome.

During a routine physical last January, I mentioned pain as you described. It was determined from bloodwork that my pancreas enzyme levels were elevated. After an ultrasound and a scope, the docs found quite a bit of inflamation - no known cause. Because I have lupus, they started a pred burst, and that seemed to calm things back down. I guess that lupus will occaisionally attack the pancreas.

Good Luck! Hope you are feeling better.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Regular Member

Date Joined Jun 2009
Total Posts : 36
   Posted 9/11/2009 9:10 AM (GMT -6)   
hello king, I have been dx'ed with lupus since 06. I have had some real problems with doctors in the past. My rheumy moved, I lost my insurance so I have been letting my pcp take care of me. 3 mo ago I started having hypoglycemic spells, terrible dizziness, nausia, rashes, blured vision, vibrations in my body, muscle twitches, hair loss, body aches, the list could go on & on. Oh I also have gerd. They have ran test after test because I always think it is pancreaitis but tests always come up clean. I am now seeing new rhuemy who has done labs on me to find out if the blood sugar thing is connected. I should hear from him in a couple of wks. I feel for you because this is a miserable pain. Sometimes at its worst I feel like my ribs are catching on something. Do you ever feel this?

Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 9/12/2009 12:06 AM (GMT -6)   
My mom has colitis and autoimmune problems and has a tumor on her pancreas that is inoperable but seems to be benign, though she gets bouts of pancreatitis. I have to take pancreatic enzymes to properly digest food, my rheumatologist put me on them. He said the problem is common with lupus and systemic autoimmune conditions, they often attack the pancreas.

Please keep the gerd under control as my grandmother died from it. the lining of the esophagus becomes thin and then the varices rupture and you can quickly drown in your own blood. My gi put me on prilosec for life to try to prevent the same fate.

You might have them do an ultrasound of your liver. Liver problems, like fatty liver, are much worse for the patient thanthe doctors realize and cause a lot of other problems. The ribs catching sounds like this. Fatty liver is related to diabetes. Your nausea and rashes may be due to a reaction to meds due to fat inthe liver, as can dizziness vision problems and twitching. High eosinophils can be a sign of allergic reaction.

hairloss can be caused by high/low FSH (follicle stimulating hormone) which can be a sign of endocrine problems and is worth getting tested. The other symptoms you describe remind me of thyroid/pituitary problems. Neurological problems are common with endocrine problems. Get your lab values and check them against the true recent changed values available on the internet. Ithink they lowered the TSH to 3 but not sure if they raised it again. I have irreversible brain damage and neurological damage from untreated thyroid problems. I was euthyroid (had normal or only mildly high TSH) because I also have pituitary problems. You need a good endo that treats symptoms. Sometimes an OB/gyn who specializes in bioidentical hormones will be willing to run more endo tests and do a great job in treating mild problems causing major problems. Mine is better than my endo by far. Make sure they test your TPOs (antithyriod antibodies or antmicrosomal antibodies). Mine were so high they were causing consciousness problems. My neurological problems got much better when I went on thyroid medicine.

If you are not on medicine (Metformin for example) for your blood sugar, youneed to investigate getting treated. Thyroid problems often trigger neurological problems and diabetes, which triggers fatty liver, which causes lots of gi problems

So yeah, you're right, it may all be related. Diabetes is a lousy disease and I gained a new respect for my grandparentswho had it once I got it. I hope you get some good answers and don't give up until you do.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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