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Reny123
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/9/2009 11:26 PM (GMT -7)   
Hi, my name is Renata. Reny for short. I'm only 14 and new to this but I was just wondering if anyone could help me feel better by giving me some advice. For the past few weeks i've been having strange dizzy spells (where everytime I stand I'm near passing out),pressure mostly in my left ear but sometimes in my right, and I sometimes see and/or feel things shake (most of the time I think it's a small earthquake but when I ask people if they've felt anything, nobody ever does). I don't get nauseos but i'm always tired (I know that just being a sophmore in high school is probably what's making me tired but it's kind of a different tired), and I forget things either almost instantly or in a short period of time. The reason I can't tell a doctor is because I no longer have health insurance and I have a couple of other problems that make it harder to figure out. I have ADD or attention deficiancy disorder and when we did have health insurance, I had tried concerta and had an allergic reaction so the treatment was discontinued and about the time school started again I started trials again. I am now on 15mg. of adderall and it is my final refill unless untill my parents can find insurance. We knew that I was allergic to concerta because about a week after the first trials, I went 3 days with full blown migranes and this wierd pressure all over my head untill days after I stopped but I've been on adderall longer and it's working great with my memory and stuff but I can't really tell if the ear pressure is just being caused by adderall or it's something else. I'm also getting the strange pressure all around my head again and it is really exausting. Another thing is I have absolutely horrible vision and a regular pair of glasses for me (with insurance) is $450+ dollars and my former optomitrist (or any other I saw) could never get it compleatly right because aside from the bad vision, i'm nearsighted, farsighted, and I have astigmatism. My eyes have always foucused and unfocused depending on what I was looking at but recently the unfocusing is alot worse so I don't know why that is. I'm alot more tired than usual and alot of it has to do with the fact that I have a moderate curve to my upper and lower back so my posture tires me out and hurts me a bit but I'm not just tired, Its different, I just sort of blissfully daze and start to fall asleep in my place almost everyday now so there's that. The rocking sensation is the wierdest...I actually feel and see things as if the room is shaking and it just happens randomly and then I feel confused after. The dizzy spells are what affect me most, they happen about every 9 out of 10 times I stand and what happens is I can't see for a few seconds and after a few more seconds I'm fine but really confused (just like when you stand up too fast but preety much all the time) there have been a few times that I passed out form the dizzines but just for a few minutes. And the pressure in my head isn't going away anymore. Well thank you if you actually read all of this, I would really appreciate if anyone with advice would please give it and I'm sorry this was so long. We barely figured out the ADD about 5 or 6 months ago and my grades were absolutely awful...I'm a smart kid (not to sound cocky) and I know I can do better...and I am, but I'm sure it would be alot easier I knew what was going on with my own body; so please, give me whatever advice you can and again, thank you. idea idea idea idea

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/10/2009 7:56 AM (GMT -7)   
Hi & Welcome to the forum.

My advice is to see your doctor, but I understand your reasons for not thinking that possible. Please make sure to tell your parents about ALL your symptoms like you told us, maybe they can try harder to find you treatment. We are just a group of sick people here, not drs.

Your symptoms don't really match the lupus symptoms, if you are worried that you might have lupus check out the "Lupus Resources" thread at the top of this forum - it either lists the cruteria or has a link to it, I don't remember which.

Sorry not to be of more help,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/10/2009 9:29 AM (GMT -7)   
My advice is to write down all of your symptoms and as Lynnwood suggested, show the list to your parents. I hope you figure out what's going on.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 9/10/2009 10:24 AM (GMT -7)   
Hi Reny,
 
I agree with the others that you do need to see a doctor.  Is there a symptom you're having that lead you to think you might have Lupus? 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,
 Moderator for the Lupus and Fibromyalgia forums


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 9/10/2009 3:56 PM (GMT -7)   
wow, I wouldn't mess around with those symptoms. Don't be afraid to tell your parents. I may be nothing or it could be something that you don't want to ignore. So don't ignore it. Your parents would want to know. You know how i know that. Cause i am a parent, and understand that even without insurance there is a way to work it out. Goo now!!! Talk to them!!!!
Take care and Good luck. Please let us know how it went!! My daughter is 14 too. Laura wink
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible Lupus and/or ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.prednisone and Lyrica


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 9/10/2009 4:42 PM (GMT -7)   
Hi Reny and welcome. I agree that, insurance or not, you need to see a doctor. I know, easier said than done. Your collection of symptoms could be related or there could be multiple things going on. And there always remains the possibility of medication intolerance (sounds like you haven't been on the adderall that long). That can sometimes take a while to show up.

If you took a list of symptoms into your school nurse or counselor, could they direct you to some places that might help? Please consider that!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.

Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept

Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


Reny123
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/10/2009 5:46 PM (GMT -7)   
oh! I'm sorry, haha I probably should have mentioned that my parents do know; we've tried a few free clinics but they said I can't get any real testing unless I have insurance. Sorry if I lead you guys to belive they didn't know tongue well actually... I don't know why this post was put under lupus because I just posted randomly; I never intended for this to end up in lupus but what a coencidence! My mother has lupus! (seriously! I didn't plan that) but other than that, I don't really worry about lupus...I have a few of those dots on my hands that alot of people with lupus have but of course since it runs in the family and the symptoms match a little that's always the first thing the clinics look for but I always test negative. I know that people who have lupus test negative many times before positive but, it's just not something I worry about because everytime I go to a free clinic, lupus is always first but again I'm sorry this was posted under lupus...as you can see I never mention lupus once in my first post. Well I already knew nobody was going to be tell me anything really significant, but does anyone have any suggestions on free clinics in the centrall valley? Really anywhere is fine. Haha my parents already hit up all of the ones in my city eyes

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/10/2009 7:42 PM (GMT -7)   
Country, State, Area? I bet there are lots of "Central Valley"'s around! :-)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


Reny123
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/10/2009 11:35 PM (GMT -7)   
hahaha! Sorry, central California turn
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