How long can we stay on prednisone?

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/12/2009 8:21 PM (GMT -7)   
Hi-
My prednisone from the injections in my back and shoulder are wearing off and I'm getting bad headaches,severe fatigue, and mentally I'm scared because I'm so forgetful. I of course want more pred.  I have low ACTh and Cortisol of Cushings type syndrome prior to steroid treatment and have secondary adrenal dysfuction, though mild. Sometimes I think I just need a certain amount of prednisone every day.  I know most of us probably feel that way and many of us do need it virtually constantly.  I am at sort of a crux. 
 
I hate injections because of this because even though these lasted a long while, you never know when they are going to wear off. At least with a pill taper you know what to expect.
 
Does anyone here have cushings like problems either from pred or not?  How do you handle prednisone?  For me, if I don't take it, my endo bloodwork is bad. My endos won't do anything because they like me cushings like because if I get really sick they can give me big doses, but I have to live with the up and down and the down is horrible.  My adrenals and pituitary just don't pickup like they should. Any ideas would be appreciated. I'm planning on going to the rheumie.  Could I be just crashing now?  Before I got the injections I went a really long time with no steroids for my endocrine testing,  I slept very deeply constantly and could not stay awake even to drive and my family had great difficulty wakng me. I could not exercise. I could not stay awake. I know now that is from my endocrine. Any help would be appreciated. My rheumie gave me prednisone and taper instructions for "emergencies" in case I had trouble getting in.  When you are in this situation, do you start it or do you wait until it gets bad?
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/13/2009 7:23 PM (GMT -7)   
It stinks that you are going through all these ups and downs of prednisone. Do you know if there is any reason that you are not on a daily maintenance dose of prednisone? I know some people are on prednisone long term. I've been on it for 3 years now and am hoping to get off of it if the methotrexate works for me.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/14/2009 7:22 PM (GMT -7)   
Hi hippi--
Thanks so much. I don't know. Ididn't know they can do that. I will have to ask. I asked about every other day therapy and the doc refused. That was a few years ago.

I've been having problems lately with my shoulders swelling and getting hot and with my hips messing up, and spine, they just keep giving me the injections instead of the tapers. But when I'm on the pill taper, I get the relief I think it would work for the shoulders too, but they say the injections last longer. I guess I need to go back and ask. Besides plaquenil, I don't think I can tolerate the other options due to my liver.


Thanks and I hope you are doing well!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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