Hi Stacie. I'm sorry you've been hit with more problems. I have these problems too. My walking is so unsteady that I have frequent falls. That's why I must use a cane or rolling walker. Just a few months ago I had a neuro workup- MRIs, EEG, neuro-psych exam and anti-phospholipid ab tests while I was flaring. Nothing pathological showed up so the neurologist said it must be the lupus.
I also get infected, ingrown fingernails and my thumbs split. Rheumy said it's my Sjogrens. I was given rx antibiotic cream for when I get them. I do some bathroom surgery and push the skin back from the nail then use the rx and keep covered with bandaids. I think you're the first lupie I know of that has this besides me. Yep the strange is ordinary and nothin is normal.
As for my vision, it's been good lately, but there was a time I couldn't drive. I hope your rheumy can give you some good advice! Love ya, Donna
Hi Stacie - so sorry you've been dealing with so much at once. It's always worse when the explanation is elusive. I did have exactly the kind of infections on the fingernail that you're talking about. It's when my pcp sent me to the rheumatologist. I actually saw him about it because it had happened a couple of times, and then I noticed the fingernails/fingers actually looked a little different after the infection had cleared. He said it could be Sjogren's and sent me to the rheumy. Of course it was all gone by the time I saw her, but she did and still does suspect Sjogren's, however, I'm seronegative for it.
What I did to deal with the infection was soak the sore finger in epsom salts and warm water a couple times a day. Really pulled the infection out quickly and eased the soreness. And I'm not sure about how this relates to what you're dealing with - but I have some weird "head/eye" things from time to time. I've always blamed my fibro when my eyes sort of feel "jerky" for a second or two. It really is hard to explain these things! Also - I have a little vertigo from time to time - always shortlived - only lasts 24-36 hours and it's not severe, but it makes me feel "lurchy" or unbalanced - especially when turning the body or the head. I won't drive when it happens, but I can get around the house okay. I couldn't tell from your post whether it was actual muscle weakness or more dizziness. My mother was just diagnosed with Meniere's Disease. She described her symptoms as "not dizziness really - just feel unsteady when walking and discombobulated" and the symptoms were increased with head movement and lying down. The first ENT she saw didn't run all the tests and missed the diagnosis. At any rate - I hope you can get some answers soon and will start feeling better!