Swine flu scare

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/27/2009 7:50 PM (GMT -7)   
I was in Sunday school today and a man and his wife and two young girls were there that haden't been in a while.  The little girls were coughing and running around being little girls and the mom informed everyone that they had not been there because they all got swine flu. the husband was really ill and still was coughing.
 
I got scared and got up and said, "I gotta leave.."  They wanted to know what was wrong and I explained that I'm immuno suppressed and really weak now and I haven't had the flue shots and that if I get the flu it could kill me.  My liver can't tolerate the drugs they'd need to give me.  They were talknig about how their little girls had fevers of 105 and had turned blue and all.
 
I was scared. Even though it was a week ago.  I felt bad and later went back in.   I don't know what the incubation period is or how long after symptoms subside you are stil contagious.  Was I a jerk or paranoid or did I do the right thing. I have my fingers crossed that I don't get sick. I'm afraid I really offended the people but they don't understand, even with an explanation. THey don't understand immunosuppression. They think I should be spiritually protected. I'm of the belief that you need to help yourself first before asking for divine intervention.
 
Thanks for any opinions on this.  It just freaked me out. Especially since I was munching on a cupcake they brought for us! It was sweet and they are nice. If I get really sick again, I just don't know if I can handle it.  In the past, they have to discontinue the drugs early on because of my liver and I"m left to prayer as to whether I pull through.
 
 
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/27/2009 11:53 PM (GMT -7)   
Marji,

You did the right thing. They were wrong to have gone to church. In fact, I just watched a commercial put out by our state department asking people to stay home from work if they feel sick. I don't know exactly what the incubation period is, but if I were you, I would call my doctor. It's better to be safe.

It's beyond me why some people can be so oblivious to the fact that they might be spreading disease. I hope you are doing ok.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 9/28/2009 4:56 AM (GMT -7)   

Hey Marji! You deffinatly did the right thing. I have actually done that as well...but most people know that I am on Chemo and really immunosupressed. I have been reading all the info I can on the H1N1 virus and they have just recently said that witht his flu, you are still contagious 3 days after you stop running a fever. They also have said that washing your hands will help you not get it but it is an air borne flu, so if someone sneezes and their germs gets in your eyes, nose, mouth or even an open sore than you have a greater chance of getting it. That is why it is spreading around so quickly.

I am one of those people that are probably being over careful. I avoid public places and the places I can't avoid I wear a mask. Work makes me where a mask cause they are really worried. Most people I am around understand. Sometimes I will write on the mask...on chemo, im not contagious, you are. And then one day I put if you look at me funny I will cough on you. LOL! I would have done exactly the same thing. This is nothing to mess around with. Don't worry about offending people, when they hear what is going on, they should understand! I sure hope you don't get the H1N1 virus but if you even start having symtpoms please get yourself to a doctor to be on the safe side!!


Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


nona43
Regular Member


Date Joined Jul 2009
Total Posts : 42
   Posted 9/28/2009 9:30 AM (GMT -7)   
Hi Marji, I think you have every right to be afraid myself I am scared to death I take cytoxan ,remicade and steroids I am very immunosuppressed my best friend called me late last night her son 12yrs was diagnosed yesterday with swine flu he was very ill fevers of 105 the ER doc told her if you dont start the tamaflu within 48 hrs it will do no good he also told her that they are seeing new cases everyday I am taking this very seriously I live in the oklahoma city area I had no idea it was so prevalent in my area I talked with a nurse freind she told me STAY OUT of public areas as much as you can this flu can kill people like you, I hear that a vaccine will be avalible in oct but I also heard on the news that when it comes out most of it will be in the form of a nasal mist my doc says we cant take the nasal mist form as it contains live virus the shot contains dead virus I will wait for the shot and get it as soon as possible I am not sure how accurate this info is about the vaccine as I just heard it on the news not from a doc please be careful all of us need to take great care this is a real threat to people like us I know that most people dont understand when we run out of the room when we find out someone is sick but I understand and I know that everyone else here does to dont feel bad you are just protecting yourself . well I have went on enough I dont want to scare anyone I have been waiting for this subject to come up I was wondering if anyone was as scared as me.take care Marji.............nona
dx Lupus,whith  brain, kidney ,heart invovment
Rhumitoid Arthritis ,seizures ,autoimmune hepatitis.
Meds-planquanil, lamictal ,lopressor ,imdur ,nitro, vtaminD ,metformin,
synthroid, lortab, phenergan, xanax ,prednisone ,kenelog injections
cytoxan, remicade
 
  Never Give Up!
                          nona


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/28/2009 4:51 PM (GMT -7)   
Thanks so much Amy, nona and Pat, its good to know what to do.  I felt bad but I made it through without getting sick. Now I'm trying to get a flu shot. I don't know why I am weaker as the steroids wear off, but I feel stronger on them then when I get that washed out feeling as they fade, which is where I am now, then I alway get sick with something it seems.
 
That's so funny about the mask. Maybe I should get some.  I have a few at the house.  I could write on it "TB positive" I don't think anyone would have trouble with me wearing it then.;) I am scared because my liver is bad and I end up having to go off iv antibiotics and such because I just can't tolerate them.
 
I'm sorry to hear you're having to go through the chemo Amy. You will be in my thoughts and prayers, as is everyone at healing well.
 
 
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 10/4/2009 6:31 PM (GMT -7)   
I am scared silly of this flu as well. I am trying to avoid public places that are confined areas. Even though it isn't in my area yet, I am sure it won't be to much longer before it is. I don't want to see anyone that I know get it, I have never been as scared of a flu before as I am now. We have heard so many conflicting stories about this flu that I don't know what to think or believe about it. I think you did the right thing, I would have did the same thing.
 
 
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/5/2009 6:53 PM (GMT -7)   
Thanks, Connie, I knew you all would understand. It's hard to explain to people you aren't being snobby sometimes, especially out here in the country. Its just I can't afford to get sick,I tell them. I ended up going to a big church to do and everyone brought food and didnt even think of it. And I seem to got through okay. I am lucky we livein a small isolated town and outbreaks have been rare so far, at least among certain areas of town, primarily where there are fewer children. Its awful this has hit the kids so hard. I am hopeing to get the regular flu shot tomorrow and when and if the dead virus one is available then I will get that too. I hope you all are able to stay free of this and get the vaccines, if need be. I like the flu shots, but have to admit I'm afraid of this H1N1 since when they rush with vaccines they can have problems.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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